Laura Brencher’s Post

The New Year is only three short weeks away! As we look ahead to 2025, we anticipate a few key trends to shape the future of patient advocacy: 1️⃣ Personalized advocacy approaches 2️⃣ Increasing use of digital platforms 3️⃣ Greater involvement of Al and data analytics 4️⃣ Expansion of global advocacy networks These trends will play a pivotal role in improving patient care, the goal that should motivate and guide all our efforts. Visit our blog to learn more: https://lnkd.in/gnTzyMhh #patientadvocacy #patientcare

Change is happening in healthcare, whether companies are ready for it or not. I believe that patient advocacy will be the revolution that transforms healthcare in the United States—if we allow it to be. Success in advocacy often leads to early commercial success, especially in drug development. The sooner companies engage with advocacy organizations and truly listen to what patients want from a product, the better the chances of a successful drug launch and widespread usage. This shift is beginning, but it requires a deep understanding from those in C-Suite towers of the critical impact these teams can have. If we support and prioritize patient advocacy, we can drive meaningful change in healthcare. Let’s #bridgethegap and ensure that this revolution reaches its full potential.

We've arrived at the Patient Centricity and Engagement Conference, ready to dive into transformative discussions with industry leaders from Pharma, advocacy groups, and patients themselves. Together, we're turning words into actions, driving patient engagement through impactful, collaborative partnerships. We’re looking forward to discovering fresh new insights on pushing patient centricity forward and the panel discussions on stakeholder collaboration, patient perspectives, end-to-end engagement, and overcoming barriers. Stay tuned as we share highlights and key takeaways! #PatientCentricity #PatientEngagement #HealthcareInnovation #AdvocacyPartnerships

💪 𝐒𝐭𝐫𝐞𝐧𝐠𝐭𝐡𝐞𝐧𝐢𝐧𝐠 𝐑𝐞𝐥𝐚𝐭𝐢𝐨𝐧𝐬𝐡𝐢𝐩𝐬 𝐰𝐢𝐭𝐡 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲 𝐆𝐫𝐨𝐮𝐩𝐬: 𝘈 𝘒𝘦𝘺 𝘵𝘰 𝘉𝘦𝘵𝘵𝘦𝘳 𝘏𝘦𝘢𝘭𝘵𝘩𝘤𝘢𝘳𝘦 𝘖𝘶𝘵𝘤𝘰𝘮𝘦𝘴 Insights from 𝑬𝑳𝑨𝑽𝑨𝒀: 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬. 𝐄𝐥𝐞𝐯𝐚𝐭𝐞𝐝 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞. report show us that building and maintaining robust relationships with patient advocacy groups and community-based organizations is crucial to delivering effective healthcare solutions. 🤝 Engaging these groups in meaningful dialogue not only helps address patient needs more effectively but also deepens our understanding of the challenges and opportunities within the patient population. 𝐓𝐡𝐫𝐞𝐞 𝐤𝐞𝐲 𝐛𝐞𝐧𝐞𝐟𝐢𝐭𝐬 𝐨𝐟 𝐬𝐭𝐫𝐞𝐧𝐠𝐭𝐡𝐞𝐧𝐢𝐧𝐠 𝐫𝐞𝐥𝐚𝐭𝐢𝐨𝐧𝐬𝐡𝐢𝐩𝐬 𝐰𝐢𝐭𝐡 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲 𝐩𝐚𝐫𝐭𝐧𝐞𝐫𝐬 ⬇ • 𝐄𝐧𝐡𝐚𝐧𝐜𝐞 𝐘𝐨𝐮𝐫 𝐄𝐧𝐠𝐚𝐠𝐞𝐦𝐞𝐧𝐭 𝐒𝐭𝐫𝐚𝐭𝐞𝐠𝐲: Working closely with advocacy groups allows us to refine our approach, ensuring that our strategies are better aligned with the unique needs and concerns of the patients they represent. • 𝐈𝐦𝐩𝐫𝐨𝐯𝐞𝐝 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐎𝐮𝐭𝐜𝐨𝐦𝐞𝐬: By collaborating with these organizations, we can ensure that patient voices are heard and integrated into decision-making processes, leading to more patient-centered care and improved health outcomes. • 𝐒𝐭𝐫𝐨𝐧𝐠𝐞𝐫 𝐂𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲 𝐓𝐫𝐮𝐬𝐭: Building strong partnerships fosters trust within the community, ensuring that patients feel supported and understood, which is essential for long-term engagement and adherence to treatment plans. 🔹 𝘊𝘰𝘯𝘯𝘦𝘤𝘵 𝘸𝘪𝘵𝘩 𝘜𝘴: 𝘈𝘵 𝘈𝘳𝘤𝘩𝘰, 𝘸𝘦 𝘢𝘳𝘦 𝘥𝘦𝘥𝘪𝘤𝘢𝘵𝘦𝘥 𝘵𝘰 𝘴𝘶𝘱𝘱𝘰𝘳𝘵𝘪𝘯𝘨 𝘺𝘰𝘶𝘳 𝘢𝘥𝘷𝘰𝘤𝘢𝘤𝘺 𝘦𝘧𝘧𝘰𝘳𝘵𝘴. 𝘊𝘰𝘯𝘵𝘢𝘤𝘵 𝘶𝘴 𝘵𝘰 𝘭𝘦𝘢𝘳𝘯 𝘮𝘰𝘳𝘦 𝘢𝘣𝘰𝘶𝘵 𝘩𝘰𝘸 𝘸𝘦 𝘤𝘢𝘯 𝘩𝘦𝘭𝘱 𝘺𝘰𝘶 𝘵𝘳𝘢𝘯𝘴𝘧𝘰𝘳𝘮 𝘢𝘥𝘷𝘰𝘤𝘢𝘤𝘺 𝘪𝘯𝘵𝘰 𝘢 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘤 𝘢𝘴𝘴𝘦𝘵 𝘵𝘩𝘢𝘵 𝘥𝘳𝘪𝘷𝘦𝘴 𝘨𝘳𝘰𝘸𝘵𝘩 𝘢𝘯𝘥 𝘦𝘯𝘩𝘢𝘯𝘤𝘦𝘴 𝘱𝘢𝘵𝘪𝘦𝘯𝘵 𝘭𝘪𝘷𝘦𝘴. #BridgeTheGap #HealthcareInnovation #PatientAdvocacy #Advocacy #CommunityEngagement #PatientCentricCare #HealthcarePartnerships

Greetings, It is indeed my pleasure to share this survey from Lindsey and Erin who are diligently working on their PPALS PACT Capstone project. They are addressing an important topic, so I hope that my colleagues who work in Industry along with my colleagues from Patient Advocacy Organizations will take 10 minutes to complete the survey. You know deep down that you want to know what everyone thinks about this question!!!! Yes, I am exerting a little peer pressure here and I hope that it works! All kidding aside, thanks so much for sharing your opinions. Professional Patient Advocates in Life Sciences (PPALS)Professional Patient Advocates in Life Sciences (PPALS) You are invited to complete a brief (no more than 10 minute) survey being conducted by two PPALS members, Erin Smith and Lindsey Wahlstrom-Edwards, as part of their capstone project. The survey will ask questions about how, when, and why life science companies and Patient Advocacy Organizations interact. The results from this survey will be aggregated anonymously and will be used to inform a framework and best practices guide for recruitment vendors who are engaging with Patient Advocacy Organizations for industry-adjacent purposes. To access the survey for life science advocacy team members, please click https://lnkd.in/eZ3eG-8K.   To access the survey for Patient Advocacy Organization team members, please click https://lnkd.in/egMFG_Mv. Thank you in advance for your time and support of this work. hashtag #patientadvocacyinlifesciences hashtag #patientadvocacy hashtag #professionalpatientadvocatesinlifesciences hashtag #patientengagement Engaging Advocacy Organizations in Clinical Research Design and Implementation - Life Sciences Patient

Discover how Patient Advocacy Groups (PAGs) are revolutionizing #RareDisease research and driving clinical and commercial success. Read our latest blog to learn how IQVIA is partnering with PAGs to advance innovative treatments and improve patient outcomes. Read now: https://bit.ly/3ZDKttA

Last week, MHP Health's Advocacy team attended the fifth annual Patient Centricity Conference, an event dedicated to elevating patient engagement and centricity in healthcare. Our Head of Advocacy, Alison Dunlop, joined a distinguished panel alongside thought leaders from UCB, Lundbeck, and Cuttsy+Cuttsy® to tackle the critical issue of dismantling the barriers to patient centricity. The panel's insights highlighted that while there has been progress during the last 20 years, long-standing patient engagement challenges continue to affect truly patient centric care.   In her contributions, Alison highlighted the necessity of embedding patient-centric values within organisational culture, the power of data insights to tailor approaches, and the importance of engaging diverse stakeholders to ensure the right groups are included decision making.  Here are our key insights from the conference: 🌟 The Power of Sharing Lived Experience: Patients’ lived experiences are just as valuable as clinicians’ and they should be similarly considered as key opinion leaders  🌟The need for cultural shifts: Organisations need to integrate patient centricity into their core strategies, which requires a shift in internal culture and internal stakeholder engagement  🌟The need to build trust: Forging genuine, long-term partnerships with Patient Advocacy Groups is rooted in trust and transparency, and industry must move beyond transactional interactions to ensure improved relationship The event was a powerful reminder of the collective need and commitment to making healthcare more patient-focused. We're buzzing with ideas and eager to support our current and prospective clients, in achieving their patient-centric goals. #PatientCentricity #HealthcareEngagement #PatientCentricityConference #MHPAdvocacy 

Is there a secret weapon in rare disease trials?   Teaming up with patient advocacy groups isn’t just nice-to-have. It’s essential.   ✔ Patient advocacy groups bring unparalleled insights into the patient community. They can help with patient identification and recruitment—one of the biggest hurdles in rare disease trials. Knowing where to find patients and having a trusted voice by your side? Game-changer.   ✔ When biotechs and advocacy groups align on goals, the impact can be huge. It’s about more than just moving research forward; it’s about getting treatments to patients faster.   ✔ From my experience working with patient advocacy groups, I've learned that it’s essential to listen closely to what they have to say. They provide powerful insights that shape trial design to better address patients’ real needs.   Have you partnered with patient groups in your research efforts? What insights have shifted your perspective.   #PatientAdvocacy #RareDiseases #Biotech #Collaboration #ClinicalResearch #PatientCentric

🔍 Tip of the day: Harness the power of patient advocacy groups to enhance your clinical trial recruitment efforts! 🗣️ Collaborate with relevant organizations to access their networks and amplify your study's visibility within the patient community. By engaging with advocacy groups, you'll tap into a valuable source of support, insights, and potential participants who are eager to contribute to medical advancements. #PatientAdvocacy #RecruitmentStrategies

How can we make sure advocacy is recognized as a true asset in #pharma and #biotech❓ Advocacy brings the patient to the table, shaping strategies that genuinely connect industry with what the #patient needs. But too often it’s seen as a cost rather than a core piece of an organization’s success. If we want to change that, we need to show the impact of #advocacy in a way that’s clear and measurable over time. 📊 Using data and research to measure engagement and initiatives over time helps demonstrate just how much advocacy drives meaningful change. When we can quantify the positive effects on patient engagement and community outcomes, advocacy isn’t just seen as valuable— 𝐢𝐭 𝐛𝐞𝐜𝐨𝐦𝐞𝐬 𝐚 𝐬𝐭𝐫𝐚𝐭𝐞𝐠𝐢𝐜 𝐝𝐫𝐢𝐯𝐞𝐫. Grounding advocacy’s role in measurable results builds a healthcare ecosystem that’s truly responsive and centered on patient needs. #PatientAdvocacy #PatientEngagement #HealthcareInnovation #HealthEquity #PatientOutcomes #Data #BridgeTheGap