Hilliary Hughes’ Post

Delighted to have partnered up with Daxko in bringing social value measurement to the USA. Measurement of social value is only the beginning to unlock endless opportunities to maximise the value these great organisations (YMCA and non for profit wellness centers) are putting back into society through sport and physical activity. 4GLOBAL PLC & Daxko

Nonprofit organizations are under growing pressure to prove the impact of their work—not just to funders, but also to their communities. That’s why Daxko and 4GLOBAL PLC have teamed up to offer a new integration that helps wellness centers track and showcase the real health outcomes of their programs. By measuring how efforts prevent chronic diseases like type 2 diabetes, heart disease, and cancer, nonprofits can use this data to improve community health and secure the funding they need to keep growing. 🌱 Read more here: https://lnkd.in/exA4NKBQ #nonprofitimpact #healthoutcomes #wellnesstech #daxko #4global

I don’t generally post personal stuff here, but last weekend I spent a day with various patient organisations: #nonprofits that represent groups of people with specific illnesses. Some better known e.g. MS, lung and breast cancer, some very rare like epidermolysis bullosa, a condition that results in blistering of the skin, or haemophilia, a bleeding disorder that can even cause spontaneous bleeding. By definition, rare diseases means not many people suffer from it. But the lower occurrence also means less awareness and advocacy, which in turn unfortunately also generally leads to less access to subsidies, treatment, and overall support. Why am I sharing this? Partly cause raising awareness of these illnesses helps build community, and #communities help provide support, especially for those who really need it. And partly because under the radar, behind closed doors, in homes and in the back office, there’s an army of #unsungheroes supporting, caring for and fund-raising for patients, engaging with regulators, participating in clinical trials, and generally putting in a huge amount of effort to represent those patients who can’t represent themselves. One of the most insightful things I took away from the day was someone saying: “We exist as a #volunteernonprofit group because there’s a gap in the system. Success would mean we aren’t needed anymore.” So here’s a HUGE shout out to all the unsung heroes for plugging that gap. You are all awesome and an inspiration 🙏🏼👏🏼❤️ http://haemophilia.org.sg/ https://lnkd.in/gRsvfdUb https://www.bcf.org.sg/ https://lccs.com.sg/leap/

Join us as we talk with Benson Fayehun, a passionate advocate for addressing health inequalities. Benson is the Founder and President of the Relief for Human Suffering Foundation, a U.S.-based public charity, and the UK Head of Oncology Business Unit at MSD*. In this episode, we delve into how factors like poverty, socio-economic status, language, and more often have a greater impact on cancer care outcomes than the treatment itself. This thought-provoking conversation highlights some of the systemic challenges in healthcare and opens the door to critical themes we plan to revisit in future episodes. We hope you enjoy. * This is not a MSD endorsement and we acknowledge that many pharma companies are interested in this area. This episode is not sponsored by MSD. https://lnkd.in/ezbYNCR7

Efficiency is crucial for non-profits like the Motor Neurone Disease (MND) Association. With Ivanti Neurons for #MDM, they can recycle devices and apps, ensuring resources are used effectively and more patients receive help faster. "Neurons for MDM helps us to be very efficient with what we do," notes Richard Cave. Find out how MND Association is optimizing resources for greater impact: https://lnkd.in/d6TztsGu

November is Alzheimer’s Disease Awareness Month! With Alzheimer’s cases rising rapidly, increasing awareness and supporting research are more important than ever. Together, we can make a difference—here’s how you can show your support this month: 📢 Share Knowledge: Spread awareness by sharing this post, as well as Alzheimer’s facts and personal stories, on social media. Every share helps bring attention to this growing health challenge. 💜 Wear Purple or Teal: Show your solidarity by wearing Alzheimer’s awareness colors—purple and teal—throughout November. Share your reason for wearing these colors and spark meaningful conversations with others. 💸 Donate or Volunteer: Consider making a donation or giving your time to organizations supporting Alzheimer’s patients and their families, like the Alzheimer’s Association or the Alzheimer’s Foundation of America. Every contribution brings us one step closer to better care and treatment. This month, let’s honor and support those affected by Alzheimer’s and work together to drive awareness and change. #AlzheimersAwareness #EndAlz #ShowYourSupport

Ruralco Water and the Waterexchange are teaming up to raise some much-needed funds and awareness in relation to hashtag #Men’sHealth. The Movember Foundation is a leading charity dedicated to changing the face of Men’s health. Taking on #Mental #Health and #Suicide #Prevention, #Prostate #Cancer, and #Testicular #Cancer, which are largely preventable causes, yet often not spoken about, particularly in the workplace. Our dialogue and behaviours need to change if we want to challenge the status quo. Since 2003, Movember has funded more than 1,320 men’s health projects around the world, shaking up men’s health research and transforming the way health services reach and support men. Ruralco Water and the Waterexchange teams are dedicated to this cause, having experienced the impact of men’s health issues firsthand. If you would like to support us or join our team ‘Ruralco Mo and Co’ and have a bit of fun in the process, please click on the link below. https://lnkd.in/gvwpeQUf Nutrien Ag Solutions - Australia Jon Armstrong Peter Duggin GAICD Francesco Maiese Allan Anderson Lincoln Parr Paul Cooper Anthony Bent Marianne Graham Peter Lawford David Barthold Heather Henderson Drew Matthews Jenny Martin Bec Sobey Kris Brennan Ricki Martin Rob Andrews Shane Geiberras Jeff Milne Shaannie Webb Rhonda Risstrom Rebecca Williams Sean Mooney

You never really think that you'll join a rare disease community. I joined this community in 2017 when my mom was (finally!) diagnosed with multiple system atrophy and passed away a few months later. I'm honored to spend this Rare Disease Day 2024 with the board of The Multiple System Atrophy Coalition. In our board meeting, we're focusing on our 3-year strategic plan and whether we're headed in the right direction in three key areas: advocacy and awareness, research, education and support. 𝐇𝐞𝐫𝐞 𝐚𝐫𝐞 𝐚 𝐟𝐞𝐰 𝐟𝐚𝐜𝐭𝐬 𝐭𝐡𝐚𝐭 𝐀𝐋𝐋 𝐫𝐚𝐫𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞𝐬 𝐬𝐡𝐚𝐫𝐞: 🤔 Lack of scientific knowledge and quality information often delays diagnosis (and doctors often get it wrong). 💰 It is challenging for people to get the healthcare and services they need, often resulting in social and financial burdens on patients. 🌐 Experts, researchers and doctors must collaborate globally to develop better treatments and cures. 𝐒𝐨 𝐰𝐡𝐚𝐭 𝐜𝐚𝐧 𝐲𝐨𝐮 𝐝𝐨 𝐭𝐨 𝐬𝐮𝐩𝐩𝐨𝐫𝐭 𝐭𝐡𝐞 𝐫𝐚𝐫𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲? 🗣️ Use your voice (or vote) to advocate for rare disease legislation. 🤲 Donate to an accredited non-profit organization. 📘 Learn how you can support the rare disease community personally and professionally. The US-based National Organization for Rare Disorders is a tremendous global resource. #rarediseaseday2024 #multiplesystematrophy #rarediseaseawareness

Ruralco Water and the Waterexchange are teaming up to raise some much-needed funds and awareness in relation to #Men’sHealth. The Movember Foundation is a leading charity dedicated to changing the face of Men’s health. Taking on #Mental #Health and #Suicide #Prevention, #Prostate #Cancer, and #Testicular #Cancer, which are largely preventable causes, yet often not spoken about, particularly in the workplace. Our dialogue and behaviours need to change if we want to challenge the status quo. Since 2003, Movember has funded more than 1,320 men’s health projects around the world, shaking up men’s health research and transforming the way health services reach and support men. Ruralco Water and the Waterexchange teams are dedicated to this cause, having experienced the impact of men’s health issues firsthand. If you would like to support us or join our team ‘Ruralco Mo and Co’ and have a bit of fun in the process, please click on the link below. https://lnkd.in/gvwpeQUf Nutrien Ag Solutions - Australia Jon Armstrong Peter Duggin GAICD Francesco Maiese Allan Anderson Lincoln Parr Paul Cooper Anthony Bent Marianne Graham Peter Lawford David Barthold Heather Henderson Drew Matthews Jenny Martin Bec Sobey Kris Brennan Ricki Martin Rob Andrews Jeff Milne Shaannie Webb Rhonda Risstrom Rebecca Williams Sean Mooney Shane Geiberras

November is Alzheimer’s Disease Awareness Month! With Alzheimer’s cases rising rapidly, increasing awareness and supporting research are more important than ever. Together, we can make a difference—here’s how you can show your support this month: 📢 Share Knowledge: Spread awareness by sharing this post, as well as Alzheimer’s facts and personal stories, on social media. Every share helps bring attention to this growing health challenge. 💜 Wear Purple or Teal: Show your solidarity by wearing Alzheimer’s awareness colors—purple and teal—throughout November. Share your reason for wearing these colors and spark meaningful conversations with others. 💸 Donate or Volunteer: Consider making a donation or giving your time to organizations supporting Alzheimer’s patients and their families, like the Alzheimer’s Association or the Alzheimer’s Foundation of America. Every contribution brings us one step closer to better care and treatment. This month, let’s honor and support those affected by Alzheimer’s and work together to drive awareness and change. #AlzheimersAwareness #EndAlz #ShowYourSupport