Ivanti’s Post

Nonprofit organizations are under growing pressure to prove the impact of their work—not just to funders, but also to their communities. That’s why Daxko and 4GLOBAL PLC have teamed up to offer a new integration that helps wellness centers track and showcase the real health outcomes of their programs. By measuring how efforts prevent chronic diseases like type 2 diabetes, heart disease, and cancer, nonprofits can use this data to improve community health and secure the funding they need to keep growing. 🌱 Read more here: https://lnkd.in/exA4NKBQ #nonprofitimpact #healthoutcomes #wellnesstech #daxko #4global

CRPS, aka Complex Regional Pain Syndrome, is a rare chronic pain disease. For some, it may "go away" on its own. For others, it comes and goes, or doesn't get better and worsens. Because the disease is complex, a cure is harder to find, and medical treatments for symptoms vary in effectiveness. No one should have to go through this lonely, painful struggle alone. That's why CRPS Warriors Foundation was founded: To support the care and wellbeing of CRPS patients and families by raising awareness about CRPS, connecting CRPS patients with doctors and other resources, helping CRPS patients afford medical treatments through the foundation's scholarship, and researching for a cure. YOU can help to make a difference too! Please vote for us to share in a $65,000 grant at https://lnkd.in/gA7W7snc to help us continue funding CRPS patients' medical treatments and researching for a cure! #mygivingcircle #nonprofit #chronicpain #crps #RSD #crpswarriorsfoundation #nevergiveup #nonprofitorganization #raiseawareness #raredisease #crpsawareness #crpswarrior #hopeforacure #complexregionalpainsyndrome #reflexsympatheticdystrophy #crpsstrong #crpsfighter #internationalwarriors #littlewarriors #trustpatients #painisreal #donate

Please join us on Sunday November 10th for the 2024 NYC Kidney Walk! Kidney Walks are a vital source of support as we provide real-time assistance for those in need. More than 80 cents of every dollar donated goes to research, patient services, professional education, public health education, and community services.  Action: We ensure that 37 million Americans living with chronic kidney disease get diagnosed, treated and supported early.  Education: We provide the public, patients, and healthcare professionals with tools to promote kidney health. Accelerating Change: We advocate for change on Capitol Hill and support life-saving research.

ACLM would like to thank to everyone who contributed to our Make an Impact campaign! With the growing burden of unsustainable healthcare costs and the millions suffering from chronic disease, it has never been more clear that the time is now to make a change. There is still time to contribute, and any contribution goes a long way. Here are some of the ways your donation could make an impact: 🔵 Scholarship funding that supports equitable access to lifestyle medicine 🔵 Continued development of educational offerings for clinicians 🔵 Development of clinical guidelines and practice standards 🔵 Advocacy efforts that shape policy at the highest level Make an Impact today: https://bit.ly/3zedKkR

My friend Florin has CHM. It is a very, very rare condition that affects 1 in 100,000 people. Every year, an even rarer group of people turn up in New York, and we run the New York Marathon to raise money for research into this condition. Everyone gets something different out of it. I get to turn up for people I care about, which as it turns out is one of the most meaningful things I do all year. Every year, something magical happens, as it always does when a group of remarkable people turn up for each other. This year I got to watch my partner Gemma run her first 10k, 20k, 30k, 40k and marathon, off the couch, on the same day 😂. I got to watch Todd Beckett MVP a proposal by running a marathon, searching for tacos, jumpers, recruit small army of photographers, wearing sandals and a compression sock for a twisted ankle. My dude sprinted during a marathon carrying random shit to wingman a proposal. CHM sucks, it's broken all our hearts, it's been incredible to watch all these people turn up over and over again to slowly put them all back together. Help us with it! We need donations! We need visibility! Share this post, donate what you can, help make a magical thing happen https://lnkd.in/gwxKpMgu Oh also, donate more than 200 and I'll teach you whatever tech thing you like for an hour. I've got a patent, a zero day, a paper, I've made Amazon millions by looking for non-obvious projects. I'm very, very good at finding high leverage low-hanging fruit. It is extremely likely you'll get more than 200 dollars worth of value out of it 😎

I rarely to never post personal posts on here, but this was worthy. #coatsdisease #coatsdiseaseawareness #coatsstrong #curecoats https://lnkd.in/eCXGeagG another year, another Coats' 5k! Help support B in finding a cure for Coats! Another year, another Coats' 5k! For anyone whose interested in supporting B's 5k team, donating for research towards a cure, or learning more in general, especially if you work with children, I highly encourage you to check out Jack McGovern Coats' Disease Foundation - you never know whose sight you could help save! We included his story over the years in his page, but here's an update since the last Coats' post! Present day (May 6, 2024): Today is B's 5th Birthday. He was officially diagnosed with Coats' the day before his 3rd birthday, marking today as his 2 yr and 1 day anniversary of his diagnosis. Between then and now, he has undergone 4 surgeries, and been declared legally blind in his right eye. Coats' was something we had never heard of, and there are few things scarier in the world than being told your child has a rare disease with no known cause or cure. As a parent your whole instinct is to protect and guide your kids, but how do you do that when your kid is diagnosed with a rare disease that has virtually no answers....insert Jack McGoverns Coats Disease Foundation. The single most feeling I remember during the diagnosis was overwhelmed. We had SO MANY questions, with virtually no answers. And not even the most experienced medical professionals could give them to us. I encourage every one to research #knowtheglow and check out Jack McGoverns foundation - you never know whose sight you could help save! And if you're able to support, every cent helps! While there is no cure today, we are forever hopeful that in the future we can find a cure and a treatment for B and others with Coats'.

November is Alzheimer’s Disease Awareness Month! With Alzheimer’s cases rising rapidly, increasing awareness and supporting research are more important than ever. Together, we can make a difference—here’s how you can show your support this month: 📢 Share Knowledge: Spread awareness by sharing this post, as well as Alzheimer’s facts and personal stories, on social media. Every share helps bring attention to this growing health challenge. 💜 Wear Purple or Teal: Show your solidarity by wearing Alzheimer’s awareness colors—purple and teal—throughout November. Share your reason for wearing these colors and spark meaningful conversations with others. 💸 Donate or Volunteer: Consider making a donation or giving your time to organizations supporting Alzheimer’s patients and their families, like the Alzheimer’s Association or the Alzheimer’s Foundation of America. Every contribution brings us one step closer to better care and treatment. This month, let’s honor and support those affected by Alzheimer’s and work together to drive awareness and change. #AlzheimersAwareness #EndAlz #ShowYourSupport

Did you know that every 6 minutes ⌚ someone is diagnosed with Parkinson's? There is currently no cure for Parkinson's disease and funds raised through Parkinson's Foundation Moving Day Walks can help support research needed to find a cure. Will you join me and #Move4PD? To learn more, visit MovingDayWalk.org. Parkinson's Foundation #ParkinsonsAwarenessMonth #Move4RD #WEPWorks #TreatmentAccess #Patients #ExpandedAccess #WithEveryPatient

I don’t generally post personal stuff here, but last weekend I spent a day with various patient organisations: #nonprofits that represent groups of people with specific illnesses. Some better known e.g. MS, lung and breast cancer, some very rare like epidermolysis bullosa, a condition that results in blistering of the skin, or haemophilia, a bleeding disorder that can even cause spontaneous bleeding. By definition, rare diseases means not many people suffer from it. But the lower occurrence also means less awareness and advocacy, which in turn unfortunately also generally leads to less access to subsidies, treatment, and overall support. Why am I sharing this? Partly cause raising awareness of these illnesses helps build community, and #communities help provide support, especially for those who really need it. And partly because under the radar, behind closed doors, in homes and in the back office, there’s an army of #unsungheroes supporting, caring for and fund-raising for patients, engaging with regulators, participating in clinical trials, and generally putting in a huge amount of effort to represent those patients who can’t represent themselves. One of the most insightful things I took away from the day was someone saying: “We exist as a #volunteernonprofit group because there’s a gap in the system. Success would mean we aren’t needed anymore.” So here’s a HUGE shout out to all the unsung heroes for plugging that gap. You are all awesome and an inspiration 🙏🏼👏🏼❤️ http://haemophilia.org.sg/ https://lnkd.in/gRsvfdUb https://www.bcf.org.sg/ https://lccs.com.sg/leap/