PSPA

Places for the TCS London Marathon are going fast! Don’t miss your chance to participate in this iconic event. You can complete the 26.2 miles any way you like over 24 hours - walk it, run it, do it in stages, the choice is yours. Complete the distance between 00:00 and 23:59:59 BST on Sunday 27 April 2025 and you'll earn yourself a TCS London Marathon finisher medal! Signup now to guarantee your place: https://ow.ly/wxqM50UuULL #TCSLondonMarathon #LondonMarathon #MarathonTraining #RunLondon #RunningCommunity #Marathon2025 #RunningGoals

The newest edition of our PSPA Matters magazine is now available! Check out the articles inside, which will provide useful updates, insights and inspiration to all our readers here: https://ow.ly/ywWg50Utf1i #PSPAMatters #MagazineLaunch #Inspiration #LatestEdition #MagazineArticles #CommunityEngagement #Research #Magazine #News #ResearchCommunity

We’d like to say a big thank you to Garfield Weston Foundation for giving PSPA a grant of £20,000, which is helping us create a better future for everyone affected by PSP and CBD. The Garfield Weston Foundation is a family-founded grant-maker that supports a wide range of charities across the UK. The Foundation donates around £100 million each year to ensure that charities, like PSPA, can deliver their vital work – we are delighted to receive their support. Thank you!

As the year comes to an end, we’re looking back at what’s been an exciting year for PSPA. We celebrated our 30th Anniversary in a number of different ways including launching the first 30th Anniversary Awards to recognise our incredible supporters from the PSP & CBD community. Take a look at the winners below: • Joanna Gass: Volunteering Award • Christine Harrison: In-Memory Award • Patrisha David: Always Amazing Award for Someone Living with PSP • Judith Hamilton: Caring Award • Steve Watson: Fundraising Award • Ruth Tillard: Always Amazing Award for Someone Living with CBD Once again, a big congratulations to all of our winners, and a big thank you to all of our supporters for your continued time and support this year and beyond. Read more about all of our winners in the latest edition of PSPA Matters which is out this week. #TeamPSPA #PSP #CBD #AnniversaryCelebration #CommunitySupport #Volunteering #Awards #Supporters #Community #Fundraising #Caring

Wednesday 18 December is the recommended last posting date for Christmas! So, make sure to make any final Christmas purchases from our shop tomorrow so that they’ll be delivered in time! We currently have a sale on our Christmas cards and 30th anniversary items, so take a look and grab yourself a bargain. We also have a virtual Christmas card available to purchase that you can send to loved ones. You can browse our shop here: https://ow.ly/sKqG50UsIUE #ChristmasShopping #LastMinuteGifts #ChristmasCards #HolidaySale #ShopLocal #GiftIdeas #VirtualCard #ChristmasSale #ChristmasPostingDates #Christmas

We’re hiring! PSPA are recruiting for two Part time Helpline Care Navigators in Scotland and Wales. The role includes but is not limited to: • Become the ‘first point of call’ for people living with PSP & CBD and their families living in Scotland. • Providing people with support and information over the phone and via email. • Providing briefing and education sessions and attendance at neurology clinics across Scotland and Wales Find out more information including the full job description and how to apply on our website here: https://ow.ly/5clH50UoYlL #CareNavigator #JobOpportunity #SupportWorkers #PartTimeJobs #ScotlandJobs #WalesJobs #JobVacancies #PartTimeRoles #Helpline #SupportRole

We’ve reached the final day of our 12 Days of Awareness! 🎄🎅 We’re ending with our lovely Christmas Bauble Appeal tree that features the special messages dedicated to loved ones from family and friends. We hope you’ve enjoyed following our campaign and learning something new. Remember we have a great range of resources available to you on our website anytime you need it: https://lnkd.in/gus2SeTn. Thanks for all your continued support this year, we’re looking forward to an even bigger and more exciting year. You can share these posts anytime to help spread more awareness of PSP & CBD and the services we can provide. Let us know in the comments below what your favourite post was 👇 #12DaysOfAwareness #PSP #CBD #AwarenessCampaign #CharitySupport #SpreadAwareness #Christmas #Festive #ChristmasCampaign #ChristmasAwareness

It’s day 11 of our 12 Days of Awareness! 🎄🎅 Today is all about the personal experiences of those living with CBD, such as Moth and Raynor Winn. The couple’s lives were turned upside down when Moth received his diagnosis of CBD, after being misdiagnosed with Parkinsons initially. As well as this, the couple lost their home which led them to them deciding to take on The Salt Path Walk. Raynor detailed the couple’s journey in her memoir called The Salt Path. The book has now been adapted into a movie which is being released in April 2025 and is starring Jason Isaacs and Gillian Anderson. PSPA supported the research of the film by inviting director Marianne Elliot to attend online CBD support groups so that the portrayal would be accurate. You can read more of Moth and Raynor’s story, as well as learning more about the movie here: https://ow.ly/JqG350UoZrt #CBDAwareness #TheSaltPath #PersonalStories #PSPA #12DaysOfAwareness #LivingWithCBD #Memoir #Movies #Films #NewMovies #CBD #PersonalExperiences #PersonalStories #GillianAnderson #JasonIsaacs

We’re hiring! PSPA are recruiting for two Part time Helpline Care Navigators in Scotland and Wales. The role includes but is not limited to: • Becoming the ‘first point of call’ for people living with PSP & CBD and their families living in Scotland and Wales. • Providing people with support and information over the phone and via email. • Providing briefing and education sessions and attendance at neurology clinics across Scotland and Wales Find out more information including the full job description and how to apply on our website here: https://ow.ly/xxFY50UoXWO Closing date is Friday 10 January 2025. We look forward to working with you! #Hiring #JobOpportunities #CareNavigator #ScotlandJobs #WalesJobs #JobVacancies #Recruiting #PartTimeJobs #HelpandSupport #SupportRole

Welcome to day 10 of our 12 Days of Awareness 🎄🎅 Today we’re looking at the Support Services we provide to people living with PSP & CBD and their families. We have a number of dedicated services to help such as: • PSPA Helpline • Support Groups • Link Volunteer Service • Online forums You find out about these and more on our website here: https://ow.ly/Jy7950UorYB #PSP #CBD #SupportServices #AwarenessCampaign #CommunitySupport #Helpline #Support #Information