Health Data Research UK (HDR UK)

📢 The largest study to date on the use of sodium valproate — an antiseizure drug — shows decreased use in women of childbearing age and during pregnancy, as well as young men. Researchers found that sodium valproate use in these groups has continued to fall, in line with changes to policy following safety concerns. This study demonstrates the enormous potential for data science approaches to improve understanding of medicines, detect safety issues, identify patients at risk and track the effects of regulatory changes. 🔬📊 Led by the BHF Data Science Centre at Health Data Research UK (HDR UK), this research was a collaboration between University of Liverpool, Swansea University, UCL, The University of Edinburgh, University of Strathclyde, King's College London, Keele University, and University of Leicester. ➡️ Learn more and read the full findings: https://hubs.li/Q030nh4n0

50 years ago, the first #NHS Patient and Public Involvement and Engagement #PPIE initiative was introduced. Building on this legacy, we launched our Data Saves Sight campaign at Moorfields Eye Hospital, London earlier in the year to let patients know how their anonymised data may be used for healthcare research. Read our PPIE review, reflecting on campaign progress, highlighting our top takeaways, and looking ahead to 2025. Read the review: https://bit.ly/3VQq3wt We are grateful to many colleagues and allies for supporting us in our efforts to reach patients, including Dr Roxanne CROSBY-NWAOBI, Subhash Suthar, Dr Hari Jayaram, Elaine Manna BSc, Friends of Moorfields Eye Hospital, Moorfields Eye Charity, UCL Institute of Ophthalmology, NIHR Moorfields Biomedical Research Centre, Health Data Research UK (HDR UK) #ophthalmology #healthdata #DataSavesSight

📢 We are pleased to share the publication of the paper, “Developing a prototype for federated analysis to enhance privacy and enable trustworthy access to COVID-19 research data”, in the International Journal of Medical Informatics. This paper outlines a collaborative effort during the early period of the COVID-19 pandemic by the International COVID-19 Data Alliance (ICODA), Health Data Research UK (HDR UK), SAIL Databank, Aridhia – Digital Research Environment – DRE, and other partners, working closely with researchers from the International Perinatal Outcomes in the Pandemic (iPOP) Study. Together, we successfully piloted a federated network infrastructure that enabled secure analysis of sensitive health data without transferring it from the source. This proof of concept used aggregate-level test outputs from iPOP Study data to demonstrate how federated analytics can overcome cross-border governance and security challenges. This initiative helped demonstrate the feasibility and value of federated approaches for collaborative global health research and learnings from which are being used in initiatives such as the Alzheimer's Disease Data Initiative's Federated and Distributed data Sharing Appliance (FDSA), the DARE UK Transformational Programme, and HDR UK's broader Federated Analytics programme. ➡️ Read the full paper here: https://hubs.li/Q030jG9y0

⏳ There is still time to apply to join our #BlackInternProg for 2025! If you are looking to start a career in health data science, the HDR UK Health Data Science Black Internship Programme 2025 can help you gain the skills and experience to make it a reality. Apply for our paid, 8-week summer internships where you’ll learn data science skills, network with the health data science community and gain experience for your CV. ⏰ Applications close on 5 January 2025. ➡️ Learn more and apply: https://hubs.li/Q030b3200 #HealthData #DataScience

📢 Join the Health Data Science #BlackInternProg for Summer 2025! This internship offers a great opportunity to gain hands-on experience in data science, learn more about a rapidly advancing area of health research, meet fellow interns, and carry out practical projects in the real world. Applications are still open to join the next cohort of interns! Learn more about the programme and how to apply: https://hubs.li/Q02-7yG60 Health Data Research UK (HDR UK) #HealthData #DataScience #data #research #uk

🌟 With 2024 drawing to a close, we are reflecting on some of our key highlights from the past year. Check out our recap video to explore some of the exciting things we've accomplished! We would like to thank our community for your support and we are looking forward to seeing what 2025 holds for health data science! 🎉 #HealthData #DataScience

“Little things make big things happen and this is what I think has happened here.” In our new blog, Kirsteen Campbell from PEDRI partner, UK Longitudinal Linkage Collaboration, shares her perspectives on our recent roundtable on the role of public involvement in applications for researchers to access data. Read more: https://hubs.li/Q0300DBT0

🆕 We recently welcomed a group of multidisciplinary and emerging researchers and technologists working or studying in health data science to our Early Career Researcher Forum. In our latest blog post, Elliot McClenaghan and Fatemeh Torabi, co-hosts of the Forum, reflect on the event’s success and key takeaways. ➡️ Find out more: https://lnkd.in/epSn4rqY #HealthData #DataScience #EarlyCareer #ECR #ECRConf

🌟 Collaboration is key to transforming health data research 🌟 Building a more connected and sustainable health data research ecosystem requires strong partnerships. That’s why we’re proud to work with NHS England’s Data for Research and Development Programme, transforming how health data is used to deliver meaningful public benefit. Together, we’re making it faster and easier for approved researchers to securely access NHS data, driving impactful discoveries that improve lives. NHS Transformation Directorate 🚀 A major milestone 🚀 The adoption of the Health Data Research Gateway by the NHS Research Secure Data Environment Network marks a significant step forward, providing a single, streamlined entry point for researchers to explore NHS data available for approved research purposes. 📽️ Explore the journey 📽️ Discover more in our new video series, featuring Rebecca Cosgriff, Deputy Director for the Data for R&D Programme, in conversation with Emily Jefferson, CTO at HDR UK, and David Seymour, Director of Data Partnerships at HDR UK. In this clip, David and Rebecca reflect on the origins of our collaboration and highlight the importance of leveraging existing expertise to unlock the full potential of the UK's health data. 👉 Watch the clip and explore the complete series here: https://hubs.li/Q02_BLsm0 #ResearchPoweredByNHSData #DataSavesLives #HDRGateway #HealthData #Research

🎉 We are delighted to now have over 60 internships pledged for the #BlackInternProg 2025! Thank you to the latest host organisations who have joined the programme: - BHF Data Science Centre - Cancer Research UK (CRUK) - Driver Programme: Swansea - Real World Evidence (LRWE) - University of Leicester - Analysis Group - AstraZeneca - Sanofi - The Strategy Unit - UCL Digital AMR Hu - Bennett Institute for Applied Data Science - Queen's University Belfast ➡️ Learn more on our website and get involved: https://hubs.li/Q02_rlGM0