Sobi - Swedish Orphan Biovitrum AB (publ)

As 2024 comes to a close, we take a moment to reflect on a year filled with meaningful progress and impactful milestones. Together, we have continued to advance our mission of transforming the lives of those living with rare diseases. This year, we have deepened our impact, strengthened collaborations, and made significant progress toward creating a better everyday life for individuals and families on their journey toward improved health. A heartfelt thank you to everyone at Sobi and our partners for your dedication and shared commitment to making a difference. Here’s to building on our achievements and embracing the opportunities ahead in 2025!

With Unite4Rare, Sobi makes a clear commitment to the rare disease community. We will carefully measure our progress and share regular updates, keeping us accountable to the community. Our four-part accountability approach includes: 🔸 Solid commitments 🔸 Tracking metrics 🔸 Regular reassessment 🔸 Annual validation To learn more about Unite4Rare and our commitment to transparency, visit: sobi.com/en/unite4rare. Unite4Rare is Sobi’s ambitious commitment to improving the lives of those affected by rare diseases. Co-created with leaders from the patient community, it outlines our pledge to connect, nurture, collaborate, and innovate to make a meaningful impact.

We are delighted to welcome David Meek as the new chairman of the Board of directors at Sobi. "I am deeply honoured to join Sobi as chairman of the Board. Sobi's impressive growth trajectory and its potential for further leadership in the rare disease arena are truly commendable. The impact Sobi has had on individual patients, their families, and communities is incredibly inspiring. A strong patient focus and an innovative approach are crucial for success in this industry, something clearly at the heart of Sobi. I look forward to being a part of this journey and continuing to advance access to treatments for rare disease worldwide," says David Meek. David Meek was elected chairman at the Extraordinary General Meeting on 11 December 2024. Learn more about our commitment to making a difference for those living with rare and debilitating diseases at sobi.com. #Sobi #RareDiseases #BoardOfDirectors #InvestorRelations

Unite4Rare represents Sobi’s long-standing commitment to the rare disease community. This public pledge builds on our history of specialised expertise in rare diseases and patient engagement, taking our commitment to the next level through four interlinked pillars: 🔸 Connect with the healthcare community to foster new partnerships 🔸 Nurture meaningful relationships with patient stakeholders 🔸 Collaborate to address unmet needs and improve patient outcomes 🔸 Innovate to enhance the lives of people with rare diseases Find out more about how Unite4Rare is dedicated to making an impact. https://lnkd.in/dbkhfKYZ Unite4Rare is Sobi’s ambitious commitment to improving the lives of those affected by rare diseases. Co-created with leaders from the patient community, it outlines our pledge to connect, nurture, collaborate, and innovate to make a meaningful impact. #Sobi #RareDiseases #Unite4Rare

Join us at ASH 2024! From 7-10 December, the annual meeting of the American Society of Hematology will bring together over 28,000 haematologists and other healthcare professionals in San Diego, USA.   As the world's largest haematology event, ASH 2024 offers great opportunities for networking, sharing insights, and fostering new collaborations - all with the goal of advancing care for people living with rare diseases.   Visit us at booth #2429 in the exhibition hall - we look forward to connecting with you. #Sobi #RareDiseases #Haematology #ASH2024

Today, we are proud to launch Unite4Rare, Sobi’s long-standing commitment to the rare disease community. Co-created with internationally renowned patient leaders, this initiative outlines what individuals, and their families can expect from us through four dedicated pillars: Connect, Nurture, Collaborate and Innovate – each supported by measurable commitments. The launch of Unite4Rare marks an important milestone in our journey to transform the lives of people living with rare and debilitating diseases. Learn more about Unite4Rare and what it means to Sobi. https://lnkd.in/dbkhfKYZ #Sobi #RareDiseases #Unite4Rare

Join us to make a meaningful impact on patients' lives. Our global footprint is expanding, and so is the opportunity to make a difference for people with rare and debilitating diseases. If you're passionate about making a difference and want to be part of a growing team, see our open positions on LinkedIn or sobi.com. Your next career move is just a click away. https://lnkd.in/d2qJ2hH #Sobi #RareDiseases #CareerOpportunities

We are excited to announce that Guido Oelkers, CEO of Sobi, will be speaking at the Jefferies Healthcare Conference in London, UK. This year marks the 15th anniversary of Europe’s largest conference dedicated to healthcare. At this event, Guido Oelkers will share insights into how Sobi is delivering on its strategy, with an audience that includes leaders from public and private healthcare companies, institutional and private equity investors, and venture capitalists.  #Sobi #RareDiseases #JefferiesHealthcare

Join us at the 3rd ESH-EBMT Translational Research Conference. From 15-17 November in Paris, France, the European School of Haematology (ESH) will host this conference focused on bone marrow failure and leukaemia predisposition syndromes, providing a platform for scientific interactions. The event gathers clinicians and researchers to discuss new insights, treatment strategies, and scientific progress in inherited and acquired conditions. We look forward to impactful discussions and collaboration opportunities that drive our shared mission to improve patient outcomes. If you’re a healthcare professional attending the conference, don’t miss the symposium on Friday, 15 November, at 13:20, where we will explore transformative approaches to managing paroxysmal nocturnal haemoglobinuria (PNH). Discover more about the program here: https://lnkd.in/d_qcRpki We hope to see you there! #Sobi #RareDiseases #ESHBMFS2024 #Haematology #PNH 

As RSV (respiratory syncytial virus) season is approaching in many countries, it is important to stay aware of this highly contagious infection. RSV can affect people of all ages but can be especially tough on newborns and infants with developing immune systems. You can help protect our youngest from RSV: 🔸 Wash your hands often: Regular handwashing is a simple yet effective way to reduce the risk of RSV transmission. 🔸 Cover coughs and sneezes: Use tissues or your elbow to cover your mouth and nose when coughing or sneezing. 🔸 Clean frequently touched surfaces: Regularly disinfect commonly touched areas, like door knobs, to help minimize the spread. 🔸 Avoid close contact with those who may be sick: Steer clear of close contact with anyone showing symptoms of illness. 🔸 Stay at home if you are unwell: This helps prevent the spread of RSV and other illnesses. For most young children, RSV leads to mild, cold-like symptoms, but it can become a more severe infection in high-risk groups, such as premature infants, those under six months, and those with specific health conditions. Let us all do our part to protect our little ones this RSV season. #Sobi #RareStrength #RSV