🔍 In an informative session at #ICIC2024, experts shared their knowledge about how to evaluate the impact of integrated care programs. Professor Professor Robin Miller highlighted the disparity between published work on research and theory on the one hand, and implementation and economic evaluation of integrated care programs on the other hand. 🎯 The importance of conversations and collaborations with users during the development, evaluation and implementation of an integrated care program was a prominent theme in general at #ICIC2024. Additionally, there was a shared acknowledgment of the complexities involved in conducting an evaluation of complex programs. 👌At PANAXEA, we will incorporate the lessons learned during #ICIC2024 in our work on the evaluation of complex programs to transform healthcare, including our ongoing work as part of Laurel - Actionable policies for integrated long-term care.
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The FSHD Society are pioneers in how patient organizations can lead the way to accelerate new clinical development and to proactively ensure patients get access new drugs when they get market approval. One of their visions just a year ago was to create a commercial LLC entity under their society to provide end-to-end services and technology to launch clinical trials faster and have the real-world data generation infrastructure in place to support Phase 1 to post marketing needs. Lumiio Inc. is proud to be the exclusive partner for the BetterLife health data platform technology, registries, digital tool development, and site optimization. See the article below for more details on this novel and innovative approach.
"One of the primary goals of the Hub is to proactively support existing patient registries and establish new ones such that the data required (e.g., quality of life, activities of daily living, etc.) for a Health Technology Assessment are being generated so patients can access these new therapies as quickly as possible." Head to our blog to read the full announcement about the new Global FSHD Innovation Hub. https://lnkd.in/gSs4ECeU #FSHD #FSHDResearch #CureFSHD
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Learn more about the FSHD Global Innovation Hub and how Lumiio Inc. in partnership with TRiNDS and FSHD Society is supporting the important work of Project Mercury to accelerate treatments for Facioscapulohumeral Muscular Dystrophy.
"One of the primary goals of the Hub is to proactively support existing patient registries and establish new ones such that the data required (e.g., quality of life, activities of daily living, etc.) for a Health Technology Assessment are being generated so patients can access these new therapies as quickly as possible." Head to our blog to read the full announcement about the new Global FSHD Innovation Hub. https://lnkd.in/gSs4ECeU #FSHD #FSHDResearch #CureFSHD
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Heading to #SCDM2024 this week? Don't miss Phil Kirsch, DFnet's Director of Quality, as he presents a panel discussion on "Using Standards to Make Clinical Research More Effective." Read more about this panel discussion - https://lnkd.in/gFXBAGjP #SCDM2024 #ClinicalResearch #StandardsInResearch #DataQuality
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"One of the primary goals of the Hub is to proactively support existing patient registries and establish new ones such that the data required (e.g., quality of life, activities of daily living, etc.) for a Health Technology Assessment are being generated so patients can access these new therapies as quickly as possible." Head to our blog to read the full announcement about the new Global FSHD Innovation Hub. https://lnkd.in/gSs4ECeU #FSHD #FSHDResearch #CureFSHD
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ITAC 2024 Plenary Session 1 “Empowering Care Through Technology” focused on exploring the transformative potential of innovation and technology in aged care. We had the honour of hearing from Columbia University’s Professor Gregory L. Alexander's insights on the global healthy ageing ecosystem. His expertise illuminates the path towards empowering care through innovation and technology. #ACIITC #ITAC2024 #AgedCare #Innovation #Technology
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Region 7 is excited to announce that we've reopened the CFP for Technology Improvement Awards for the 2024-2025 year! Performance Period: Until March 15, 2025 Amount: $10,000 Application Deadline: September 6, 2024, 11:59 am EDT The award focuses on upgrading, replacing or adopting technologies that will increase access to health information, and/or strengthen communications and connectivity for health. The programs are intended to help a variety of users, with a focus on minority and other underrepresented populations and the health professionals who serve them, make the most effective use of information and decision-support resources that hold the promise of promoting healthy behaviors, preventing costly and debilitating illness, and improving health outcomes when disease occurs. Learn more: https://lnkd.in/eFURnjwX
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At the 7th Society of Implementation Research Collaboration Conference in Denver, Kathrin Blum #IfIS, member of the implementation team for REVERSE Project, gave a poster presentation entitled “Ongoing tailoring approaches and their monitoring in the implementation of evidence- based interventions in healthcare settings". The poster aims to provide an overview of how ongoing tailoring has been conducted and to identify core elements that can facilitate effective ongoing tailoring and its evaluation. Explore the poster here: ➡ https://lnkd.in/exNt6gWv #SIRC #SIRC2024 #ImplementationScience #ImpSci #AntimicrobialResistance #AMR Nora Braathu, Ela Nyantakyi, Khic-Houy Prang, Marie-Therese Schultes, Bianca Albers, Lauren Clack
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Reflecting on another great Infoway Partnership Conference, where so many insightful discussions took place. A key theme was the critical importance of collaboration—among public and private organizations, governments, and, most importantly, patients. The momentum around digital health initiatives was truly energizing, particularly in areas like patient summaries and the development of standards to facilitate sharing health data. Success stories from across the country—Nova Scotia, New Brunswick, Ontario, Saskatchewan, British Columbia, and more—were motivating. One standout example came from Hamilton Health Sciences, a recipient of a Connected Care Innovation grant. Their pilot project involves using large language models (LLMs) to transform unstructured EMR data, such as clinical notes, into FHIR resources aligned with Canadian patient summary standards. Exciting progress like this showcases the potential of innovation in moving towards Connected Care. Looking forward to seeing how these initiatives continue to evolve! #ThinkDigitalHealth
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The insights shared during ITAC 2024 Plenary Session 2 were truly transformative, exploring the benefits and necessity of robust digital strategies in the aged and community care sector. Here’s a snapshot of the key highlights: ✨ Josh Maldon, Assistant Secretary, ICT Strategy and Business Assurance, Australian Government Department of Health and Aged Care, shared perspectives on transforming aged and community care into new digital horizons from the Government's perspective. ✨ Professor Len Gray, Professor in Geriatric Medicine, The University of Queensland Center for Health Services Research, emphasised the importance of data standardisation in aged and community care. ✨ Kate Ebrill, Interoperability Lead, Australian e-health Research Center of CSIRO presented a compelling case for standardisation in the sector. Key Takeaways: 💫 Government’s Aged Care Data and Digital Strategy will explore the potential of digital strategies in reshaping the landscape of aged and community care. 💫 It is critical for the sector to understand the role of standardised data in enhancing care quality. 💫 Interoperability is important for a seamless healthcare ecosystem. Thank you Fay Flevaras GAICD, Josh Maldon, Louise York, Len Gray, Kate Ebrill and George Margelis for an engaging Q & A panel. Are you in the ITAC 2024 audience? Let us know your key takeaways from this enlightening session in the comment section. #ACIITC #ITAC2024 #AgedCare #Innovation #Technology
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The final chapter of #ITAC2024 unfolded in Plenary Session 8, where the focus was on "Using the Evidence to Drive Aged Care Innovation." This session encouraged research collaborations and advancements in technology-driven care solutions. Share your reflections on how evidence-driven practices can reshape and advance aged care innovation. How can research collaborations pave the way for technology-driven care solutions? #ACIITC #ITAC2024 #AgedCare #Innovation #Technology
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