Community and Patient Preference Research (CaPPRe)’s Post

❔Missed our live Expert Knowledge Share? Now you can catch up with the on-demand video where experts delve into key topics: 🔸 Exploring current treatments for early RRMM and linking mechanisms of action to efficacy. 🔸 Best practices for combining and sequencing therapies for optimal outcomes. 🔸 Managing tolerability and safety in clinical practice based on real-world insights. 🎥Don't miss out on these valuable insights. Watch now: https://ow.ly/6bgq50SpEO6

Looking to enhance your clinical trial design? When a client needed to optimize their SSc-ILD clinical trial, they turned to Inspire for insights. In just 14 days, we gathered data from patients across the U.S., France, and Germany to: 🔍 Gain deeper patient perspectives 📝 Refine trial protocols based on real-world experiences 💡 Improve recruitment and retention for stronger outcomes Ready to design patient-centered trials that succeed? Discover how we can help you accelerate results and improve outcomes: https://ow.ly/Sy9X50TyTHf

💡Cherish B. shares her insights with myself and Rudy Malle💯 on why clinical trial companies should prioritise feedback from patients hesitant to try a product, rather than focusing solely on pre-selected patients who are more likely to use it. She highlights how this approach better reflects the general population’s potential resistance to the product. Do you agree? ✍🏾 You can find the full video here: https://lnkd.in/euBN_fSJ we shared some meaningful and useful insights you will find valuable! Dina Paoloni Ammara Muzammil Mark T.

What are the latest trends in clinical trials and research? Here are a few key highlights from recent industry-leading events: -Decentralized clinical trials continue to gain popularity -Drugs with the potential to treat multiple diseases for comprehensive patient care are under development -There is a renewed focus on Diversity, Equity, and Inclusion (DE&I) Read the blog to dive deeper into these insights and learn how 20/20 Onsite is applying them to improve ophthalmological support in clinical trials: https://hubs.ly/Q02rSDr70

🌟 𝗠𝗮𝗷𝗼𝗿 𝗟𝗲𝗮𝗽 𝗶𝗻 𝗦𝗷𝗼̈𝗴𝗿𝗲𝗻'𝘀 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗮𝘁 𝗢𝗠𝗘𝗥𝗔𝗖𝗧 𝟮𝟬𝟮𝟯 🌟 🧑⚕️ Thrilled to share a significant breakthrough from the OMERACT 2023 meeting, where the Sjögren's Disease Working Group, including Dr. Raouf Hajji, MD, PhD., co-founder of International Medical Community (IMC) and its Medical Lead, made crucial strides towards defining core domains for Sjögren's Disease. 📊 Sjögren's, known for its systemic impact and symptom heterogeneity, has long presented challenges in treatment development. This meeting marked a pivotal moment, with over 145 global experts pooling their multidisciplinary insights to refine and agree on a set of standardized core domains. This effort aims to accurately reflect the disease's diverse manifestations and incorporate the patient perspective more fully. 🩺 The group's methodology involved an extensive literature review and collaborative discussions, highlighting the importance of evolving current assessment tools to encompass the full patient experience. This collaborative push under the OMERACT framework signifies a shared commitment to enhancing clinical research and ultimately, patient care for those living with Sjögren's. 🤝 Let's celebrate this step forward in creating a more nuanced understanding of Sjögren's and stay tuned for more updates on this inspiring journey towards innovative treatments and improved quality of life for patients worldwide. Read more here: https://lnkd.in/dreavhWg #SjögrensDisease #OMERACT2023 #HealthcareInnovation #MedicalResearch #Collaboration #PatientCare

New webinar announcement! 🔔 Join our expert panel as they look at the value of Delphi panels in accelerating patient access to innovative treatments. This webinar aims to provide a comprehensive overview of the Delphi panel methodology, its application in supporting reimbursement decisions and practical considerations for effectively implementing this approach as part of your evidence generation strategy.  By attending this webinar, you will: - understand the Delphi panel methodology, including its origins and structured approach for generating expert consensus  - discover the value of Delphi Panels in supporting reimbursement decisions  - explore practical considerations for implementation in your evidence generation strategy This session is particularly relevant for Market Access teams looking to leverage robust expert opinion and consensus to strengthen their evidence packages and value propositions for reimbursement submissions, particularly for rare disease submissions where clinical data may be limited and expert perspectives are crucial to contextualise evidence for local settings. Click the link to register your free place now: https://lnkd.in/eDGeu_mk #webinar #delphipanels #marketaccess #reimbursement Priscila Mazzola, PhD Ben Barron-Millar, Praptee Ghimire

Come and see us at the AASLD Liver Meeting in San Diego on 15-19 November. Our team of experts will be happy to discuss our experience in this therapeutic area with you. Please send a DM for us to connect. On 17 Nov, from 1-2 pm PST, do not miss the opportunity to engage with our team and learn more about our poster: " Patient Voice in MASH initiative: Foundational principles of the conduct of patient centric MASH research"

Improving care through collaboration and innovation. ✔️ Glooko improves the health outcomes of people with chronic conditions through its personalized, intelligent, connected care platform. 🧑⚕️ Their proven technologies make lives better by revolutionizing the connection between patients and providers, driving patient engagement and adherence via digital therapeutics, and accelerating the speed of clinical trials. 👨⚕️ Glooko is globally deployed in over 30 countries and 8,000+ clinical locations. 🌏 Want to learn more about Glooko? Check out their website: https://ow.ly/RJkf50R2mLV Tap into Citeline's 100+ partners, reaching over 100,000,000 patients globally through one platform: https://ow.ly/LZ4K50R2mLU #ChronicCare #ClinicalTrials #PatientRecruitment

🎥 The 𝐂𝐞𝐥𝐞𝐛𝐫𝐚𝐭𝐢𝐨𝐧 𝐨𝐟 𝐭𝐡𝐞 𝐓𝐡𝐫𝐨𝐦𝐛𝐨𝐭𝐢𝐜 𝐓𝐡𝐫𝐨𝐦𝐛𝐨𝐜𝐲𝐭𝐨𝐩𝐞𝐧𝐢𝐜 𝐏𝐮𝐫𝐩𝐮𝐫𝐚 (𝐓𝐓𝐏) 𝐂𝐞𝐧𝐭𝐞𝐧𝐚𝐫𝐲 continues with the 𝐬𝐞𝐜𝐨𝐧𝐝 𝐰𝐞𝐛𝐢𝐧𝐚𝐫. Join us for this unique opportunity to learn how to tackle diagnostic challenges & ensure proper management of TTP patients for better short and long-term outcomes. Engage in the conversation with the experts on: 🔹Challenges in TTP diagnosis 🔹Clinical algorithms for TTP diagnosis 🔹Association of inherited ADAMTS13 with TTP With the support of Takeda 𝐂𝐨𝐧𝐧𝐞𝐜𝐭 𝐟𝐫𝐨𝐦 𝐧𝐨𝐨𝐧 𝐂𝐄𝐒𝐓!👉 https://loom.ly/ZfLRZJQ

Sarah Zenner-Dolan will provide unique insights as a former pharma executive who has personally experienced several Parkinson disease clinical trials during her keynote session at #PatientsEU2024. Sarah will discuss her experience with all aspects of the trial including trial selection, patient burden and what actions the industry can take to enhance the patient journey. Learn more - https://lnkd.in/gtPN3xZP #PatientsasPartners #ClinicalResearch #ClinicalTrials #PatientVoice #PatientPerspective