AOSW’s Post

Reflecting on Neurodiagnostic Week: Young Adults With Epilepsy would like to recognize the importance of Neurodiagnostic Week. Technological advancement, awareness, and advocacy in the epilepsy and medical community are crucial. There are many factors that contribute to epilepsy. Whether it’s medical care, mental health, or physical health; all of these things are important. And each part gets us one step closer to a cure. Young Adults With Epilepsy supports and appreciates the dedication of The Neurodiagnostic Society! Let’s raise awareness, and together, we will innovate change. If you’d like more information about the mission of The Neurodiagnostic Society, check out: https://www.aset.org #awareness #advocacy #epilepsy

#For #people #with #Down #syndrome, #a #longer #life, #but #under #a #cloud #WashingtonPost #11April2024 #AlzheimersDisease ".. #people #with #Down #syndrome, which causes intellectual and physical disabilities, are #almost #never #included #in #clinical #trials for drugs #to #treat or #prevent #Alzheimer’s, a #situation #advocates, #patients #and #scientists #decry #and #are #trying #to #change." " #We #don’t #want #people #with #intellectual #disabilities to be #kicked #out #of #consideration #for #clinical #trials,” said William Mobley, a neurologist at the University of California at San Diego. "

Check out this month's clinical issues column!

Epilepsy is one of the most common neurological disorders, yet stigma and misinformation persist. It's time to break the barriers! Join us in raising awareness and supporting those affected by epilepsy. Educate yourself and others about epilepsy. Support organizations working towards epilepsy research, education and advocacy. Together, we can: Break barriers of stigma and misconceptions. Empower individuals with epilepsy. Advance research for better treatments and a cure. Let's make a difference! #EpilepsyAwareness #BreakTheStigma #SeizureFirstAid #EpilepsySupport

November 17: National Epilepsy Day 💜 Today, we stand together to raise awareness about epilepsy and to honor the resilience of those living with this neurological condition. Learn Seizure First-Aid: • Stay calm and time the seizure. • Ensure the person is safe and comfortable. • Call for help if the seizure lasts longer than 5 minutes. Break the Stigma: Let’s challenge the misconceptions and embrace a supportive, inclusive mindset. Support Advocacy and Research: Every effort counts in building a brighter future for those with epilepsy. ✨ This National Epilepsy Day, let’s commit to educating ourselves, empowering others, and creating a society where everyone can thrive without fear or discrimination. #NationalEpilepsyDay #EpilepsyAwareness #SeizureSafe #BreakTheStigma

The Struggles of Pediatric Behavioral Health and Documentation Let's dive into the profound impact of encouragement, especially for those bravely facing pediatric behavioral health challenges. In a world where kindness sometimes feels scarce, every word of support holds immense power. It's a beacon of hope, reminding individuals that they're not alone in their journey and that brighter days are ahead. As CDI professionals, our role in reviewing pediatric behavioral health charts goes far beyond mere data entry. It's about diving deep into the intricacies of each case and understanding the unique needs and struggles of young patients. By meticulously ensuring accurate documentation and advocating for comprehensive care plans, we become their unwavering allies in the quest for healing and well-being. CDI leaders continue to navigate the complex landscape of pediatric behavioral health. Every step brings us closer to a world where everyone feels seen, heard, and supported. #EncouragementMatters #PediatricMentalHealth #CDIAdvocacy"

You didn't forget....did you? Join us tomorrow, March 21 at 1pmET and Register here: https://ow.ly/wamv50QHkiY For a free, virtual discussion about merging #neuromodulation with #advocacy Neuromodec and AMERICAN BRAIN COALITION

Understanding Children's Prospects: In this thought-provoking discussion, we explore how societal influences and media shape children's self-perception and aspirations. We delve into the unrealistic standards set by media and the impact on children's attitudes towards themselves and their families. Watch our latest episode to find out more! https://zurl.co/U4mc Drug Science Imperial College London Multidisciplinary Association for Psychedelic Studies (MAPS) The Beckley Foundation The National Institute on Drug Abuse (NIDA) The National Institutes of Health #ChildrensProspects #MediaInfluence #SelfPerception #FamilyValues #SocialDevelopment #ReshapeSociety #ChildhoodAspirations #HealthyMediaHabits #ParentingChallenges #CommunitySupport

WEBINAR: Epilepsy is a severe and common brain disorder that can be life-threatening. States have a significant opportunity to advance awareness and education through legislation that can help prevent #SUDEP (Sudden Unexpected Death in Epilepsy) and other epilepsy-associated deaths. REGISTER: https://lnkd.in/eK3Kgkgx Please join us to learn about state-level policies prioritized by a range of epilepsy stakeholders and about PAME's new Advocacy Toolkit, which seeks to empower advocates across the country interested in protecting people living with epilepsy. In this webinar, we will hear from experts in government affairs and epilepsy research. We will also hear from one woman who lost her brother to epilepsy and is championing positive change in her state. This webinar is generously supported by UCB, Inc. Facilitator: Tom Stanton, The Danny Did Foundation Speakers: Laura Lubbers, CURE Epilepsy Liz Collins, G2G Consulting Hannah Whitten, WHITTEN NEWMAN FOUNDATION #epilepsy #webinar

Did you know over 65 million people worldwide are affected by epilepsy, making it one of the most common neurological disorders? We had the opportunity to sit down with Bernice Martin Lee, CEO of Epilepsy Foundation to learn what they are doing to connect people to treatments, support, and critical resources, as well as lead advocacy efforts, fund innovative research and educate the public about epilepsy and seizure first aid. 💜 Watch the full story at TheBalancingAct.com. #TheBalancingAct #Epilepsy #EpilepsyAwareness #TheEpilepsyFoundation #EpilepsyWarrior #EpilepsyAwarenessMonth