EverythingALS

Here's a #ThrowbackThursday to ... last week when we held our ALS Roundtable event. Thanks to everyone who participated in the roundtable! Last Friday, we hosted an interactive 90-minute roundtable consisting of our consortia of pharma partners, sensor companies, neurologists, data scientists, regulators and patients to help advance the discovery and implementation of ALS digital biomarkers in clinical trials through our collaborative efforts. Many thanks to: Massachusetts General Hospital Massachusetts Institute of Technology Temple University King's College London Nova Southeastern University The University of Edinburgh Emory University AbbVie Bristol Myers Squibb Eli Lilly and Company Biogen Mitsubishi Tanabe Pharma America Sanofi NeuroSense Therapeutics Neuvivo Denali Therapeutics Johnson & Johnson Cytokinetics Rapa Therapeutics Brainstorm Cell Therapeutics Prilenia QurAlis IBM Research Passio AI Modality.AI ActiGraph FeetMe Linus Health ZEPHYRx Critical Path Institute (C-Path) AcuraStem Amazon Web Services (AWS) Microsoft Research

Join us tomorrow for an important conversation about ALS care!  We're excited to host Dr. Cathy Hoerth, M.D., Ph.D., Chief of the Neuromuscular Division and Director at the ALS Center at UCSF Weill Institute for Neurosciences. Dr. Hoerth will present:  🗓 "Caring for People with ALS: Addressing Cognitive Difficulties"   📅 Tomorrow at 7 PM EST | Free Webinar  Cognitive challenges can profoundly impact individuals living with ALS and their loved ones. Dr. Hoerth will share insights on understanding, addressing, and supporting cognitive difficulties in ALS care.  This is a free event, and all are welcome. Don’t miss this opportunity to learn from one of the leading experts in ALS care!  🔗 Register here: https://lnkd.in/gCsi4irb  #ALS #Neuroscience #CognitiveHealth #EverythingALS #PatientCare #ALSResearch  

#ThrowbackThursday to an incredible weekend at the EverythingALS Digital Biomarkers and Endpoints Summit last summer! We are filled with gratitude for the passion, expertise, and dedication of everyone who joined us. The quality of discussions, presentations, and networking was truly inspiring, showcasing our collective commitment to advancing treatments for ALS. A heartfelt thank you to:  🎵 John Driskell Hopkins for serenading us with his favorite song before heading to the stage on Sunday.  🏢 The Johnson & Johnson team for graciously hosting Monday's all-day Design Thinking sessions.  💙 People with ALS and their families—Brooke & Clifford Eby, John Hudacek, Steve Kowalski, Dave Shulman, McFinn Lovere, Janie Gobeli, and Mindy Uhrlaub—your voices made this event truly impactful. To our incredible speakers and contributors—Gayle Wittenberg, Ph.D., Dr. James Berry, Joel Schwartz, Melanie Leitner, PhD, Dr. Merit Cudkowicz, Dr. Terry Heiman-Patterson, Dr. Eduardo Locatelli, MD, MPH, Brendan O'Leary, Henk Schuring, Collin Hovinga—and so many others, we are grateful for your expertise and insights. Finally, thank you to our nonprofit partners, ALS ONE and Hop On A Cure, for collaborating with us to drive meaningful progress in the fight against ALS. Together, we are stronger, and this summit reaffirmed the power of community and innovation. Let’s keep the momentum going! #ALS #EverythingALS #DigitalHealth #Innovation #CommunityImpact 

💬 Join Us for a Fireside Chat with Our Pathfinders 🔥  Tonight at 7 PM EST / 4 PM PST, EverythingALS invites you to a virtual gathering where everyone is welcome! This is your opportunity to connect with caring individuals who come together to chat, listen, share and learn in a supportive and welcoming space.  Whether you're navigating the ALS journey or simply want to engage with a compassionate community, this fireside chat is the perfect place to find connection and understanding.  ✨ Don't miss this chance to be part of something meaningful! 📅 When Tonight, 7 PM EST / 4 PM PST   📍 Where: Online (virtual event)  👉 Register now to reserve your spot: https://lnkd.in/gNNx_HvF Let's come together, share stories, and build hope. We can't wait to see you there!  #ALSCommunity #EverythingALS #Pathfinders #FiresideChat #SupportAndCare  

We're happy to be back with our friends and colleagues fighting to find treatments and cures for ALS at the Motor Neurone Disease (MND) Association's 35th International Symposium on ALS/MND starting today and continuing through Sunday at the Palais des Congrès in Montréal, Québec, Canada! We cordially invite you to our poster presentation as part of Poster Session A on Friday, December 6th (today). The poster entitled “COG-07 Digitized Cognitive Assessment for ALS Patients: Implementation and Predictive Analysis Using Speech Samples and Correlations with other ALS Metrics and Kings Stage” will be presented at 5:30 PM EST on Friday and in the virtual platform as well. We look forward to seeing you! Learn more on the symposium website: https://lnkd.in/eJdz_YK #EndALS #ALSMNDSymp #CaretoCure #EverythingALS

Exciting development in the fight against ALS! 🚀  Yesterday, EverythingALS and Compass.uol officially launched their groundbreaking partnership at the Amazon Web Services (AWS) re:Invent conference in Las Vegas. This collaboration leverages the power of artificial intelligence to address one of medicine's toughest challenges: ALS.  As part of our Vision 2030 initiative, we aim to train and support 2,000 computational biologists and AI engineers dedicated to advancing ALS care and research, paving the way for transformative breakthroughs in neurodegenerative diseases.  💡 Read our full press release to learn more about this exciting initiative: https://lnkd.in/eH7FCQrA  #AI #ALS #HealthcareInnovation #EverythingALS #AWS  

🎙️ Join us tonight at 7 PM EST/4 PM PST for another session in our Expert Talk series!  We're thrilled to welcome Dr. Marjan Sepassi, Vice President of Medical Affairs at Clene Nanomedicine, Inc., as our guest speaker. Dr. Sepassi's presentation is titled: "CNM-Au8 Long-term Evidence and EAP Program Update"  This is an exciting opportunity to learn more about the latest advancements in ALS research and treatment. Don’t miss it!  📅 When: Tonight at 7 PM EST/4 PM PST 💻 Where: Online   🎟️ Cost: Free to register and attend  👉 Please register Here: https://lnkd.in/gCsi4irb  Let’s continue driving innovation and awareness in the fight against ALS!  #EverythingALS #ALSResearch #ExpertTalks #ALSCommunity #NeuroScience #PatientCare 

🌟 Today is Giving Tuesday – Join Us in the Fight Against ALS! 🌟  This Giving Tuesday, your support can make a real difference for the ALS community. At EverythingALS, we're driving innovative research, connecting patients with vital resources and building hope for a future without ALS.  Every donation helps us expand our work, from advancing research to empowering families with tools and support. Together, we can create meaningful change!  💙 Make your impact today: https://lnkd.in/emDbbQJZ Let’s move closer to a world without ALS — one step at a time.  #GivingTuesday #ALS #MakeADifference #EverythingALS  

Tomorrow is Giving Tuesday! 🌟 Your generosity makes it possible for the EverythingALS team to continue helping people with ALS. Whether it’s funding research studies, developing tools to detect ALS earlier, or connecting patients with resources like our updated EverythingALS app, your support matters. Together, we can create hope and make a difference. 💙 Will you join us? Donate today to EverythingALS and be a part of this life-changing mission: https://lnkd.in/emDbbQJZ Let’s make tomorrow count for ALS patients, their families, and the future. 🙌 #GivingTuesday #ALS #ALSAwareness #GiveBack

🍂🦃 Happy Thanksgiving from EverythingALS! 🦃🍂  This season, we’re filled with gratitude for our incredible community of supporters, patients, families, and researchers who make our mission possible. Together, we’re advancing the fight against ALS and bringing hope to so many lives. 💜  Thank you for being part of our journey. Wishing you a joyful day filled with love, warmth, and the company of those who matter most. 🧡  #HappyThanksgiving #Gratitude #ALSCommunity #TogetherWeFight #EverythingALS #HopeForALS