Dysphonia International, formerly the National Spasmodic Dysphonia Association (NSDA), is a nonprofit organization. Our mission is to improve the lives of people affected by spasmodic dysphonia and related voice conditions by finding answers through research, building understanding through education and awareness, and raising hope through support for those living with these challenging vocal disorders.
External link for Dysphonia International
300 Park Boulevard
175
Itasca, Illinois 60143, US
We are excited to be exhibiting at The American Speech-Language-Hearing Association (ASHA) Conference! Visit us at booth 2615!
I had a lovely time volunteering with Dysphonia International this morning! If you're at the #ASHA2024 convention, stop by their booth (in Flex C) to learn about their work and pick up some cool resources!
Dysphonia International reposted this
Strategic Marketing & Planning Professional | Advocate for Voice Disorders & Invisible Disabilities
📢 Calling All Podcast Hosts and Enthusiasts! 🎙️ I am a volunteer with Dysphonia International, an organization dedicated to raising awareness about voice disorders. We are on a mission to increase understanding and support for individuals experiencing vocal issues, as well as to educate health practitioners and the general public. We Need Your Help! We are looking for podcasts from around the world that would be suitable for our volunteers to participate in. Our goal is to share valuable insights and stories, spread awareness, and foster a supportive community for those affected by voice disorders. Ideal Podcast Topics Include: -Health and Wellness -Advocacy and Awareness -Personal Stories and Journeys -Mental Health and Well-being -Innovations in Healthcare If you know of any podcasts that align with these themes or if you are a podcast host interested in featuring discussions about voice disorders, please drop your recommendations in the comments below or send me a direct message. Your suggestions will help us reach a wider audience and make a meaningful impact in the lives of many. Thank you for your support! 🙏 #DysphoniaInternational #VoiceDisorders #Podcast #HealthAwareness #Advocacy #MentalHealth #HealthcareInnovation
Thank you, Peter Haskell, for your continued efforts to raise awareness about #spasmodicdysphonia by sharing your story! Special thanks to New Jersey Support Group Leader Risa Clay for making her voice heard! We appreciate all of your support. https://lnkd.in/gXdvCy6t
ADVOCACY ALERT | Medical Advisory Board Chairperson Dr. Robert Bastian shares what is at stake if the proposed changes to Medicare are passed. Even if you are on private insurance, it is important to write and make your voice heard by July 13, as those carriers usually adopt Medicare guidelines. Details on the proposed policy, template letters and contact information can be found here: https://lnkd.in/ekPNYDdJ Thank you for your support! https://lnkd.in/gpqUup4c
Advocacy Alert | Proposed Medicare changes could limit access to botulinum neurotoxin treatment for spasmodic dysphonia. Your voice matters! Submit your public comments by July 13, 2024. The proposed guidelines outline specific guidance on dosing, the site of injections, whether they are unilateral or bilateral, and dosing intervals. One example is that the muscle mentioned for the initial injection in all cases is the posterior cricoarytenoid muscle. This muscle is typically only injected in people with abductor spasmodic dysphonia and not adductor spasmodic dysphonia. The muscles that are injected for adductor spasmodic dysphonia are not mentioned anywhere in the guidelines. The proposed guidelines are not based on commonly accepted practices by the physicians treating these patients nor on current peer-reviewed published articles. The proposed guidelines place an undue burden on patients and providers and don’t inform clinical care. Visit our website for all the details, including an overview of the changes, the appropriate email address for your state, and a customizable letter template. Let's make a difference together! #Advocacy #SpasmodicDysphonia #MedicareChanges #VoiceMatters #medicare #botulinumtoxin https://lnkd.in/ekPNYDdJ
Today is the first World Day for Assistive Technology! In an increasingly digital world, the ability to communicate effectively is more important than ever. For individuals with a vocal disorder, assistive technology for voice offers a transformative solution. These innovations enable users to express themselves, interact with others, and participate fully in society. Read more about the benefits that significantly enhance the quality of life for users. #voice #dysphoniainternational #WorldATday #UnlockTheEveryday #AAC
Thank you, Peter, for helping to raise awareness about #spasmodicdysphonia and the challenges of living with a voice disorder.
Storyteller at the Tunnel to Towers Foundation Adjunct Professor of Journalism at Fordham University
Here's a link to my open letter to MSNBC and company President Rashida Jones about Chuck Todd's comment about RFK, Jr's vocal problems. Spasmodic Dysphonia (SD) is a life-altering condition which impacts an estimated 50,000 Americans and most people have never heard of it. "Imagine not being able to read aloud to your child or to say the words 'I love you,' so they’re heard by someone you care about. Sometimes speaking up is physically impossible." "I hope you’ll use this opportunity to educate Mr. Todd, other employees and your viewers about the challenges of not being heard. As a network, you sometimes give voice to the voiceless. This would seem to be the perfect opportunity to do just that." "I would hope there would be a greater understanding and empathy for people who struggle to be heard." https://bit.ly/3VeUuMX Dysphonia International. #YourVoiceMatters. #SpasmodicDysphonia
Great meeting to be part of prior to our annual Symposium this weekend.
Excited to be part of the two‐day Bridge2AI - Voice Conference in Tampa, FL. Yesterday we co-sponsored a workshop with Whispp on how AI can be harnessesed to help people with voice disorders. Today our President Charlie Reavis participated in an insightful panel on breaking down silos and building partnerships. Thank you Yael Bensoussan for leadership and always including Dysphonia International!
We are excited to be participating in the event with @Whispp! Thank you, Bridge2AI - Voice for the opportunity!
Today, the day after World Voice Day, we are pleased to share with you that Whispp will be hosting a joint workshop with Dysphonia International at the Bridge2AI - Voice symposium. 📆 May 1-2, 2024 📍 Tampa, Florida The symposium is for startups, companies and stakeholders invested in artificial intelligence and voice biomarkers. Find more information: https://lnkd.in/ekUCd72H Whispp will be there to talk about its AI-powered real-time assistive voice technology and phone-calling app for the millions of people suffering from voice disorders. Will you be there? 💬 Message Joris Castermans to schedule a meeting at the event or to let him know that you will also be there. #bridge2aivoice #voiceai #voiceaisymposium #artificialintelligence #tampa #tampafl #techfair #techstartup #startups #tampatech #tampainnovation #innovation
The latest episode for World Voice Day on the #SpeechPathPod podcast is now live! Learn more about Margaret, a registered Nurse and Coordinator at Cardiology Catheter Labs at a hospital in the the UK. Juggling five labs, Margaret spends her days in conversations with consultants, colleagues, patients, and wards. About five years ago, she began noticing changes in her voice—initially subtle disruptions that worsened over time. Margaret is now actively raising awareness about #voicedisorders, particularly muscle tension dysphonia, which she experiences firsthand. Special thanks to Aidan Osborne for amplifying our community's voices through these interviews and to Margaret for bravely sharing her journey! Tune in here: https://lnkd.in/gPcqX5Yr