Follicular Lymphoma Foundation

Follicular Lymphoma Foundation

Non-profit Organizations

Swiss Cottage, England 895 followers

Finding a cure for follicular lymphoma faster!

About us

The Follicular Lymphoma Foundation is the first organisation in the world dedicated solely to finding new treatments and cures for follicular lymphoma. Follicular lymphoma is a currently incurable blood cancer. The FLF was founded by Nicola Mendelsohn three years after her diagnosis with the disease and is focused on funding and facilitating work that will take new treatments and cures for the disease from bench to bedside in the quickest possible timeframe. We are doing this by disrupting and challenging the current thinking on how to find a cure for this disease, by mobilising patients and investing in the most promising scientific and research discovery approaches.

Website
http://www.theflf.org
Industry
Non-profit Organizations
Company size
2-10 employees
Headquarters
Swiss Cottage, England
Type
Nonprofit
Founded
2019

Locations

Employees at Follicular Lymphoma Foundation

Updates

  • Promising advancements in follicular lymphoma from #ASH24! Here are three key updates curated by our Chief Medical Officer, Dr. Mitchell Smith: 1️⃣Promising CAR-T and Bispecific Therapies  Continued follow-up from trials for relapsed and refractory FL shows exceptional promise, with many patients now in remission for several years. 2️⃣Practice-changing Potential for R2 + Tafasitamab The inMIND study treating patients with relapsed or refractory FL revealed that adding the antibody tafasitamab to lenalidomide-rituximab (R2) significantly prolongs progression-free survival without increasing major toxicity. This could redefine standard care where R2 is recommended. 3️⃣Progress from our CURE-FL Researchers Presentations by Drs. Beguelin, Brody, and Perez-Galan, supported through our CURE-FL program, showcased innovations with potential to influence future clinical trials and treatments. 📝 Stay tuned! We're preparing an in-depth summary on these developments and their implications for FL treatment. 💡 Want to explore the latest breakthroughs in treatment? Watch our expert-led webinar here: https://lnkd.in/eQrz2XSN  #CancerResearch #Hematology #CureFL

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  • We’re delighted to announce Lou Blair has joined the FLF team as our new Fundraising Manager. With a wealth of experience working with great charities like MNDA, Diabetes UK, and Woking & Sam Beare Hospice, Louise brings a deep passion for improving the lives of people living with medical conditions.  We’re excited for the impact Louise will make as we work together to drive funding for follicular lymphoma research, strengthen our collaborations, and ultimately find a cure. Please join us in giving Louise a warm welcome to the FLF! ✨

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  • Exploring the Future of Chemotherapy with Professor Jessica Okosun 🔍🧬 Following an incredible #ASH24, where the team connected with world-renowned researchers driving innovation in follicular lymphoma (FL) care, Professor Jessica Okosun, FLF Scientific Advisor, provides valuable insights into some of your most pressing questions, including the potential of emerging chemo-free treatment options.  Click the link below to read more about the evolving future of Fl care. 🔗 https://lnkd.in/emMi2Db5 #FollicularLymphoma 

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  • #ASH24 is more than just a conference—it’s a unique opportunity for our CURE FL investigators to gather in person, discuss research insights, and explore new opportunities for collaboration. Strong relationships fuel innovation, and together, we’re working to accelerate better treatments for follicular lymphoma. 🎥 Hear from Mark Murakami from Dana-Farber Cancer Institute, one of our CURE FL researchers, on the importance of collaboration. 

  • We’re proud to partner with Clinical Care Options LLC for our symposium at #ASH24: A Game Changer for Follicular Lymphoma: Mastering Use of Precision Therapies as Part of a Chemo-Free Treatment Paradigm The discussion was driven by patient perspectives, ensuring patients continue to shape the future of FL care.  Expert speakers shared insights on: 🔹 Recently approved targeted therapies 🔹 Emerging treatments for relapsed/refractory FL 🔹 Practical strategies to implement precision medicine We're grateful to have welcomed healthcare professionals from around the world as we explored the future of FL care. 🔗 Read More: https://lnkd.in/emMi2Db5

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  • It was a pleasure to convene many of our CURE FL investigators at #ASH24. These dedicated researchers are at the forefront of developing innovative treatments for follicular lymphoma. We discussed ongoing projects, future visions, and the importance of expanded collaboration to accelerate impact. Collaboration like this is key to accelerating progress and improving patient outcomes.  🔗 Learn about our CURE FL Awards: https://lnkd.in/e8ftiVTK 

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  • 🌟 The FLF team has officially arrived at #ASH24!  We’re thrilled to join the world’s leading hematology experts at the American Society of Hematology’s 66th Annual Meeting. The atmosphere is buzzing with anticipation as we prepare to collaborate, connect, and spotlight follicular lymphoma on this global stage. Over the event, we’ll focus on: ✅ Amplifying patient perspectives  ✅ Collaborating with industry leaders ✅ Raising awareness of follicular lymphoma ✅ Seeking funding to advance research Stay tuned for updates across the week.    🔗 Learn more about our presence at ASH: https://lnkd.in/eQZarJzg

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  • 🌟 This #GivingTuesday, will you partner with us to create positive, lasting change for those affected by follicular lymphoma? Your support – big or small - will fund critical research and patient empowerment programs. Follicular lymphoma isn't incurable – it's underfunded. Together, we have the power to change that.  If you'd like to learn more about how you can make a transformative impact through our programs, we'd love to hear from you.   🤝 Join us in making a difference. Donate today or connect with us to explore how you can help.  🔗 https://lnkd.in/e5KufiXe

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  • Meet Ken, an inspiring patient advocate who joined our latest webinar, Cutting-Edge Treatments for FL: What’s New and What’s Next.  Ken shared his experience with CAR-T therapy and joined our follicular lymphoma (FL) experts, Dr Mitchell Smith and Dr Jeremy Abramson, to discuss exciting advances in treatments and the power of personalized medicine.  🎥 Missed it? Watch the full webinar here: https://lnkd.in/ex4iQ8MS 📩 Stay in the loop! Register your interest for future webinars here: https://lnkd.in/eWPaVYHq A big thank you to everyone who tuned in! 

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