Epilepsy Action

We were delighted to meet with Baroness Merron yesterday for a roundtable with patient groups and other epilepsy charities to discuss the recommendations in the Hughes Report for those harmed by valproate. This situation deserves as much profile as the pelvic mesh scandal and we want to see justice across all four nations for those whose lives have been severely impacted. We look forward to working with the Baroness and her team to ensure the redress becomes reality and families affected can move forward with their lives.

🎄 The team at Epilepsy Action are rocking our Christmas jumpers and getting into the festive spirit! 🎅✨ Bringing cheer while supporting those affected by epilepsy—because the season is all about giving, caring, and coming together. 💜 #ChristmasSpirit #EpilepsyAction #FestiveFun

📣 We want to hear the experiences of people who have epilepsy, but also live with a pet dog 🐾 Support Dogs are working with Epilepsy Action to run what we believe is the first ever national survey of dog-ownership amongst people living with epilepsy. The aim is to better understand the impact having a dog – both negative and positive – can have on a person that has the condition, and on the welfare of the dogs. 💬 Ann Richardson-Greaves, Director of Services at Epilepsy Action said “We’re thrilled to be teaming up with Support Dogs to launch a groundbreaking survey aimed at better understanding the impact of epilepsy on dog owners. The initiative dives into the unique experience of those who live with epilepsy and share their lives with a dog” 🔗To take part in the survey please visit https://lnkd.in/eUeVHsN8

At Epilepsy Action we understand how important personal development is and that’s why we continue to develop our culture of learning. 2024 has seen over 800 hours of paid learning for our people and as 2024 comes to a close we want to do a special shout-out to all our team who have developed themselves or achieved qualifications. A special congratulations to the management team who have been working hard on achieving their ILM Leadership and Management Qualifications at level 5 and Level 7. Well done Chantal Spittles, David Thornton, Kathryn Hughes PhD, Tom Shillito, Janet Paterson and Daniel Jennings who achieved their level 5 certifications. And to 2 of our senior leadership team Ann Richardson and Stephanie Smith-Crawshaw who achieved their level 7. We are all ready and keen to keep learning in 2025!

If you have anyone in your network that needs epilepsy advice or support, please do encourage them to get in touch with our helpline on 0808 800 5050 - Epilepsy Action #socialprescribers #healthnews #epilepsy #epilepsyawareness #nurses #healthcoach #healthcare

If you have anyone in your network that needs epilepsy advice or support, please do encourage them to get in touch with our helpline on 0808 800 5050 - Epilepsy Action #socialprescribers #healthnews #epilepsy #epilepsyawareness #nurses #healthcoach #healthcare

We’re proud to #BackThe1in6. Now the government is launching the first ever forum to address gaps in treatment, care and support for people affected by neurological conditions. Learn more about this landmark initiative: https://lnkd.in/ew2-vQc4

Please sign this petition calling on the Department of Health and Social Care to provide the families of those harmed by #valproate with much needed support.   With MPs and Lords including Cat Smith MP & Baroness Cumberlege we have also written to Wes Streeting calling for a redress scheme for those harmed. https://lnkd.in/eBstH9VU

Our patients have worked with CPPE and Shy Teli to create a valproate learning programme for Pharmacy Professionals to help simplify the new MHRA guidance. Go and practice some real-life valproate scenarios here: https://lnkd.in/et_AScKz

Creativity has the power to make a real difference. Epilepsy Action and The Creative Shootout are calling on the creative industry to raise awareness of one of the biggest hidden disabilities in the UK. With over 630,000 people living with epilepsy, it’s time to shine a light on this vital issue. Are you ready for the challenge? The early bird offer ends today: https://lnkd.in/dD_JmSUi