IFPA

Cheers to 2025! 🎉💙 This New Year, we renew our commitment to raising awareness and improving the lives of those affected by psoriatic disease. Together, let’s continue making strides toward better care, support, and understanding. Wishing you all a year filled with health, happiness, and progress. Happy New Year! 🌟 #HappyNewYear2025 #PsoriaticAwareness #HealthAndSupport

Family members and caregivers of those living with psoriatic disease want to be part of their loved one’s medical journey, but they’re often left out. 💙 Our brochure, Recommendations for Healthcare Professionals, explores how involving families in psoriatic disease care can improve outcomes for everyone and offers practical tips to make it happen. Available in multiple languages for wider access. 🌍 Download it here: https://lnkd.in/dJMsa9xN #PsoriaticDisease #hcp #familywellbeing #psoriaticawareness #psoriaiscommunity

Caregivers play a crucial role in supporting those with psoriatic disease, yet their own needs are often overlooked. 💙 Our brochure, Family Well-being in Psoriatic Disease: Caring for the Caregiver, highlights their vital role, addresses their challenges, and offers an action plan to support their personal and professional well-being. Available in multiple languages for wider access. 🌍 Download it here: https://lnkd.in/dShge8_i #PsoriaticDisease #CaregiverSupport #familywellbeing #psoriaticawareness #psoriaiscommunity

Psoriatic disease affects entire families, not just individuals. 💙 Raising awareness and fighting stigma are key to improving family well-being. Our brochure, Advocating for Family Well-being in Psoriatic Disease, shares key actions, resources, and an action plan based on real family insights to help foster understanding and support. 🌟 Available in multiple languages for wider access. 🌍 Download it here: https://lnkd.in/drk5TsJq #PsoriaticDisease #FamilySupport #familywellbeing #psoriaticawareness #psoriaiscommunity

Missed our IFPA Webinar on The Path to Pleasure: Shedding the Stigma of Psoriatic Disease and Intimacy? 🎥 Join Dr. Mitchell Tepper as he shares expert insights on overcoming challenges, enhancing intimacy, and boosting self-confidence while living with psoriatic disease. Catch the recording now: https://lnkd.in/dgjvpyyM #PsoriaticDisease #Intimacy #SelfConfidence #HealthAndWellness

It's #UHCDay! Today we call on governments to invest in health and protect people with psoriatic disease from catastrophic health expenditures. Not convinced yet? Read IFPA's resources on #UniversalHealthCoverage here: https://lnkd.in/d9r3J8eF

At the IFPA Conference 2024, interim results from the POSITIVE Study- The study goes beyond looking at the severity of psoriasis and showcased the benefits of a with focus on well-being . This groundbreaking research highlights not only improvements in physical symptoms but also in overall patient wellbeing, shedding light on the significant psychosocial burden of psoriasis. The study emphasizes how effective treatment can enhance daily activities and improve quality of life, going beyond symptom relief. The POSITIVE study is unique in its focus on patients' overall wellbeing, using the WHO-5 wellbeing index to assess mental and emotional health. This patient-centered approach is paving the way for dermatologists to take a more holistic view of treatment, considering both physical and emotional aspects of care. The study also evaluates the impact of psoriasis on families and physicians, emphasizing the importance of a comprehensive approach to disease management. #POSITIVEStudy #Psoriasis #PatientWellBeing #ClinicalResearch #Dermatology #IFPA2024

Psoriatic disease is more than skin deep. Treatment needs to do more than clearing the skin lesions. Improving the quality of life of those with the disease needs to be an essential measured outcome. In a recent study, almost 50% of participants receiving treatment reported that the disease had no longer an impact on their quality of life. Learn more about the POSITIVE Study: Click Here :https://lnkd.in/dv3J4sZs Positive Study Implementing Well being in Psoriasis Care #psoriaticdisease #psoriaticarthritis #positivestudy

Ever wondered how people living with psoriatic disease feel about their care? Psoriasis and Beyond research study- with nearly 5000 participants survey reported that : 59% feel uninvolved in deciding treatment goals, and 40% say the mental well-being impact isn't fully understood by healthcare professionals. Of those surveyed, less than 1/3 of those living with psoriatic disease are aware of its linked comorbidities like cardiovascular disease, diabetes, depression and anxiety, and psoriatic arthritis. Psoriasis and Beyond is a joint research initiative between IFPA, 16 national psoriasis organizations and Novartis AG. The joint study is overseen by an independent Steering Committee of patient advocates, dermatologists and rheumatologists Click below to explore the global and country specific Psoriasis and Beyond publications and learn more about the data. Dive into the insights at the Psoriasis and Beyond portal - https://lnkd.in/gJPZz5tx IFPA is at the #Gene to Clinic 2024. Visit the booth to more about IFPA's advocacy work using data from the psoriasis and beyond study. #psoriasisandbeyond #psoriasislife #psoriaticdisease #ACR2024

Celebrate inclusion, advocate for accessibility, and honor the strength of diversity on International Day of Persons with Disabilities 2024! 🌍💙 Together, we can break barriers and create a world where everyone thrives. Let’s not forget to uplift those navigating challenges like psoriatic disease as we champion a more inclusive future. #IDPD2024 #AccessibilityForAll