PHAEUROPE

📢Professor Ardeschir Ghofrani's talk at APHEC 2024, “PH Treatment Today and in the Future,” is available in the Bel Air Center, a virtual platform for PH patients, and is highly recommended! 🌐 In this major session, Professor Ghofrani dives into the latest breakthroughs in Pulmonary Hypertension (PH) treatment. He explains how PH is no longer a single disease, but a complex condition with multiple subgroups, each requiring a personalized approach. With new therapies like sotatercept, PH (PAH) is becoming a manageable, chronic condition, offering hope and improving quality of life for many patients. 💬This talk has been subtitled in 9 major world languages, with additional languages available upon request, making it accessible to a global audience. Discover how emerging treatments are transforming PH care, why a tailored approach is key, and the importance of patient involvement in shaping the future of treatment. ➡Watch the full talk in the Bel Air Center today! 🚀 ➡www.belaircenter.info #pulmonaryhypertension #PHTreatment #InnovationInHealthcare #BelAirCenter #PHPatients #MedicalBreakthroughs #patientempowerment #PHAEurope #PAH #awareness #raredisease #CTEPH Hipertensión Pulmonar Argentina PH Belgium - Pulmonale Hypertensie vzw Hipertensión Pulmonar España ORG Pacientes Fundación Contra la Hipertensión Pulmonar Asociación Nacional de Hipertensión Pulmonar ANHP Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Serbia AIPI Italian Pulmonary Hypertension Association Fundación Ayúdanos a Respirar Sociedad Latina de Hipertensión Pulmonar HAPCHI Asociacion Chilena de Hipertension Pulmonar Pulmonary Hypertension Association of South Africa

As we approach the final days of 2024, leaving behind a year full of experiences but carrying cherished memories that will guide us with optimism and positivity into the year ahead, PHAEUROPE’s President extends heartfelt wishes to all who have shared this journey with us—your support has been invaluable, and we are proud to have you as part of our PHamily. 💙 Dear members, partners, and friends, As we come to the end of this year, which has been especially meaningful for me as I took on the role of President of PHAEUROPE, I want to extend my heartfelt gratitude for your support, collaboration, and trust in our community. May this holiday season bring you peace, joy, and cherished moments with your loved ones, and may the New Year 2025 be filled with health, success, and new opportunities for us to advance together in the fight against pulmonary hypertension.✨🎉 Thank you for being part of our story and for making a difference with us.🙏 Warm regards, Zdenka and the whole team of PHAEUROPE ‏‏‎ ‎ #holidays #christmas #newyear #pulmonaryhypertension #phaeurope #patients #patientempowerment #awareness #positivity #motivation #inspiration #happiness Hipertensión Pulmonar Argentina PH Belgium - Pulmonale Hypertensie vzw Hipertensión Pulmonar España ORG Pacientes Fundación Contra la Hipertensión Pulmonar Asociación Nacional de Hipertensión Pulmonar ANHP Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Serbia AIPI Italian Pulmonary Hypertension Association Fundación Ayúdanos a Respirar Sociedad Latina de Hipertensión Pulmonar HAPCHI Asociacion Chilena de Hipertension Pulmonar Pulmonary Hypertension Association of South Africa

📣 Don’t miss this month’s European Lung Foundation Patient Organisation Round-up! It features highlights from our Annual PH European Conference (APHEC) 2024 in Barcelona. PHAEUROPE's APHEC 2024 brought together 70+ delegates from 37 countries, providing a platform for PH associations to network and share knowledge. With healthcare professionals also participating, patients had the chance to engage directly with experts, fostering collaboration and advancing shared goals like improved diagnosis and care. #pulmonaryhypertension #pulmonaryarterialhypertension #PAH #caregiver #PHAEUROPE ⤵️

Behind every PAH patient is a caregiver’s story of love, resilience, and advocacy. 🌍 Gerry Fischer’s journey as the father of a PAH patient and a dedicated advocate reminds us that no family should face PAH alone. 🤝 Discover his inspiring mission to fight for accessible treatments and global PAH and PH awareness. Read more in the original post! Thank you, electronRx. #pulmonaryhypertension #pulmonaryarterialhypertension #PAH #caregiver #PHAEUROPE ⤵️

#goodPHnews from Croatia 👏🙌 In Zagreb, Croatia, the 3rd National Meeting on Pulmonary Hypertension was held, bringing together experts, patients, and advocates to discuss this critical health issue. The event featured prominent voices, including the president of the Croatian PH association Plava Krila and the president of PH Europe, Zdenka Bradač who participated as a patient advocacy expert. Zdenka shared her reflections: "It was an honor to deliver a presentation titled 'The Patient's Journey: From First Symptoms to Diagnosis' and to share my personal experience with the attendees. I hope my story proved both insightful and engaging, shedding light on the challenges faced by patients. I firmly believe that collaboration among all stakeholders—medical professionals and patients alike—can greatly enhance outcomes for everyone involved. Thank you once again for the invitation and the opportunity to contribute to this significant event." This meeting underscored the importance of patient advocacy and collaboration in improving the care and treatment of pulmonary hypertension in Croatia. ➡Find out more about our initiative: www.phaeurope.org #PHAEurope #goodPHnews #croatia #pulmonaryhypertension #raredisease #awareness #patientempowerment #PAH #CTEPH Hipertensión Pulmonar Argentina PH Belgium - Pulmonale Hypertensie vzw Hipertensión Pulmonar España ORG Pacientes Fundación Contra la Hipertensión Pulmonar Asociación Nacional de Hipertensión Pulmonar ANHP Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Serbia AIPI Italian Pulmonary Hypertension Association Fundación Ayúdanos a Respirar Sociedad Latina de Hipertensión Pulmonar HAPCHI Asociacion Chilena de Hipertension Pulmonar Pulmonary Hypertension Association of South Africa

Meet the PHAEUROPE Board for 2025—a remarkable team of 🌍 dedicated patient advocates who are themselves living with various types of pulmonary hypertension (PH). Representing a network of leaders, these board members are not only presidents and founders of PH associations in their home countries but also champions of meaningful change on a European and global scale. 💙✨ Our board brings unmatched expertise in advocacy, policy reform, organizational management, and patient networking. Their collective experience amplifies PHAEurope’s voice, enabling a proactive role in shaping the future of PH care worldwide. 💪 As active participants in their national associations and influential members of European and global committees, this board strengthens PHAEurope’s position as a leading umbrella organization. Through their tireless efforts, they drive forward the mission of improving quality of life, treatment access, and awareness for everyone living with pulmonary hypertension. 💠 Introducing the Board Members: • Zdenka Bradac – President (Croatia) • Dora Erdely – Vice President (Hungary) • Natalia Maeva – Secretary (Bulgaria) • Nina Kobler – Vice Secretary (Slovenia) • Tuulia Nikulainen – Treasurer (Finland) • Tadeja Ravnik – Vice Treasurer (Slovenia) ➡Find out more about PHA Europe: www.phaeurope.org #PHAEurope #PulmonaryHypertension #PatientAdvocacy #GlobalPHCare #StrongerTogether #PHChampions #patientempowerment #PAH #awareness #patientassociation Hipertensión Pulmonar Argentina PH Belgium - Pulmonale Hypertensie vzw Hipertensión Pulmonar España ORG Pacientes Fundación Contra la Hipertensión Pulmonar Asociación Nacional de Hipertensión Pulmonar ANHP Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Serbia AIPI Italian Pulmonary Hypertension Association Fundación Ayúdanos a Respirar Sociedad Latina de Hipertensión Pulmonar HAPCHI Asociacion Chilena de Hipertension Pulmonar Pulmonary Hypertension Association of South Africa

In our latest Bel Air Center presentation, Professor Julien Guiot, PhD, Head of Clinics at CHU Liège, delivers a major presentation on 𝗮𝗿𝘁𝗶𝗳𝗶𝗰𝗶𝗮𝗹 𝗶𝗻𝘁𝗲𝗹𝗹𝗶𝗴𝗲𝗻𝗰𝗲 𝗶𝗻 𝗺𝗲𝗱𝗶𝗰𝗶𝗻𝗲, 𝗳𝗼𝗰𝘂𝘀𝗶𝗻𝗴 𝗼𝗻 "𝗡𝗲𝘄 𝗛𝗼𝗿𝗶𝘇𝗼𝗻𝘀 𝗶𝗻 𝗣𝘂𝗹𝗺𝗼𝗻𝗮𝗿𝘆 𝗛𝘆𝗽𝗲𝗿𝘁𝗲𝗻𝘀𝗶𝗼𝗻." Pulmonary hypertension (PH) has long been challenging to diagnose due to its unspecific symptoms. Artificial intelligence (AI) is emerging as a powerful tool to revolutionize PH management. AI technologies are poised to transform medical care by enabling early and more accurate diagnosis through advanced lung CT imaging analysis. The technology promises to enhance treatment planning with unprecedented precision and personalization, while simultaneously improving patient monitoring and research capabilities. Prof. Guiot explores the potential of image-based AI markers to develop innovative diagnostics and therapies for vascular-related pulmonary diseases. His research encompasses critical conditions such as pulmonary arterial hypertension, chronic obstructive pulmonary disease, idiopathic pulmonary fibrosis, and cystic fibrosis. By leveraging sophisticated AI algorithms, medical professionals can now detect subtle imaging markers that were previously challenging to identify. Despite the tremendous potential, AI technologies still face significant challenges that researchers are actively working to overcome. The goal is to create robust, reliable systems that can consistently support medical decision-making and improve patient outcomes. ➡️ Register for free to watch the full presentation ➡️ Visit Bel Air Center: https://lnkd.in/ekiz3N_P #PulmonaryHypertension #PHCare #HealthAdvocacy #EarlyDiagnosis #MedicalInnovation #artificialinteligence #PAH #ai #belaircenter #PHAEurope #patientempowerment #awareness #raredisease Hipertensión Pulmonar Argentina PH Belgium - Pulmonale Hypertensie vzw Hipertensión Pulmonar España ORG Pacientes Fundación Contra la Hipertensión Pulmonar Asociación Nacional de Hipertensión Pulmonar ANHP Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Serbia AIPI Italian Pulmonary Hypertension Association Fundación Ayúdanos a Respirar Sociedad Latina de Hipertensión Pulmonar HAPCHI Asociacion Chilena de Hipertension Pulmonar Pulmonary Hypertension Association of South Africa

#goodPHnews from Bosnia and Herzegovina 👏💪 On December 3, the world observed the International Day of Persons with Disabilities, a day dedicated to raising awareness and promoting the rights of persons with disabilities globally. This year, PH BiH Dah participated in an event organized by the ZDK Workers' Disability Association on December 2, 2024, in Tešanj, Bosnia and Herzegovina. The event highlighted the need to recognize and support marginalized individuals with disabilities, particularly those with invisible conditions, ensuring their inclusion and respect as functional and valued members of society. For individuals living with pulmonary hypertension (PH), recognition as persons with invisible disabilities is vital. This acknowledgment opens doors to inclusion and understanding in all aspects of life. We commend the efforts of PH BiH Dah in representing the pulmonary hypertension community and thank the event organizers for fostering an inclusive platform. By enabling active participation from all, including PH representatives, the event furthered the mission to create a more equitable society. Let’s always remember: NOT ALL DISABILITIES ARE VISIBLE. DISABILITY IS NOT AN IDENTITY.💜 #PHAEurope #goodPHnews #BosniaAndHerzegovina #pulmonaryhypertension #DisabilityAwareness #InvisibleDisabilities #raredisease #awareness #patientempowerment #PAH Hipertensión Pulmonar Argentina PH Belgium - Pulmonale Hypertensie vzw Hipertensión Pulmonar España ORG Pacientes Fundación Contra la Hipertensión Pulmonar Asociación Nacional de Hipertensión Pulmonar ANHP Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Serbia AIPI Italian Pulmonary Hypertension Association Fundación Ayúdanos a Respirar Sociedad Latina de Hipertensión Pulmonar HAPCHI Asociacion Chilena de Hipertension Pulmonar Pulmonary Hypertension Association of South Africa

PHA Europe is thrilled to welcome Dora Erdelyi to the position of Vice President. Her remarkable journey reveals the complex reality of pulmonary hypertension. Despite a successful double lung transplant in 2016 – a procedure doctors believed would resolve her PH – Dora discovered her condition had returned in 2022. This unexpected challenge hasn't diminished her spirit, but instead intensified her commitment to PH advocacy. Working with the Hungarian PH association, she channels her personal experience into meaningful support. From speaking at patient meetings to translating critical information and representing patients at international conferences, Dora transforms her medical journey into hope for others. Dora's commitment to uphold the missions and goals of PHA Europe will intensify our efforts, and we are truly grateful to have her on board. Welcome, Dora – your resilience is our inspiration! 💙 #patientadvocacy #PHAEurope #PulmonaryHypertension #Advocacy #PAH #patientempowerment #patientassociation #raredisease Hipertensión Pulmonar Argentina PH Belgium - Pulmonale Hypertensie vzw Hipertensión Pulmonar España ORG Pacientes Fundación Contra la Hipertensión Pulmonar Asociación Nacional de Hipertensión Pulmonar ANHP Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Serbia AIPI Italian Pulmonary Hypertension Association Fundación Ayúdanos a Respirar Sociedad Latina de Hipertensión Pulmonar HAPCHI Asociacion Chilena de Hipertension Pulmonar Pulmonary Hypertension Association of South Africa

Thank you for hosting Hall Skaara on your amazing podcast and discussing our Bel Air Center Project—a premier virtual platform for all PH patients and stakeholders. You can register and learn more about the Bel Air Center here: www.belaircenter.info