TransplantChild

🎁💖From ERN TransplantChild we would like to send you Season’s Greetings and wish you Happy New Year 2025! 🎁💖 We want to celebrate by sharing with you our "Season's Greeting Video". #HappyHolidays #HappyNewYear #ERNs #ERNTransplantChild #EU4Health #HealthUnion

Our newsletter No 70 is now available! Discover the news, webinars, live case discussions and much more... Check it out and subscribe! https://bit.ly/41fsKev #EU4Health #TransplantChild #Newsletter #ERNs

The conference "For an EU Commitment to tackle Rare Diseases" organised by the European Economic and Social Committee is ongoing. The first session addressed: "How to achieve a comprehensive European action plan on rare diseases by 2030?" In the final discussion, speakers included Till Voigtländer, Coordinator of JARDIN Joint Action, Luca Sangiorgi, Coordinator of ERN BOND European Reference Network , and Mária Judit Molnár, Director, Institute of Genomic Medicine and Rare Diseases, Semmelweis University, Hungary.

Next December 14th will be held the Second Transition Day for Adolescents with Solid Organ Transplantation (Christmas edition). 📍Venue: La Paz Paediatric Hospital (La Pajarera, SS Floor) ⏰Time: From 10.00am to 15.00pm In this edition we have organized among other activities:  - Scape Room.  - Educational debate.  - Tables with food and drink for attendees. Don't miss this great event! #RETTOS #Nurses #Transplantation #PaediatricTransplantation #Transition #Education #ERNTransplantChild #RareDiseases #Europeanreferencenetworks #ERNs #HealthCareProfessionals #HaDEA #EU #HealthUnion #EU4Health

Last Friday, ERN TransplantChild was represented by Dr Sara Mosca, Co-leader of WP2 Dissemination from Porto, Portugal, as a speaker at the Portuguese annual meeting of the Paediatric Nephrology Society with the theme "Acute Kidney Injury". #ERN #ERNTransplantChild #ERNs #HealthCareProfessionals #HaDEA #EU #HealthUnion #EU4Health #Rarediseases #Nephrology #PaediatricNephrology #AcuteKidneyInjury

Yesterday, today and tomorrow the 3rd edition of the International Course on Paediatric Asystole Donation is being held at the Research Institute of La Paz University Hospital. Dr. Francisco Hernández, Coordinator of Transplantchild, is one of the directors of the course among other great professionals in this field. #ERN #ERNTransplantChild #ERNs #HealthCareProfessionals #PediatricAsystoleDonation #InternationalCourse #PediatricHealth #OrganDonation #Asystole #HealthProfessionals #MedicalTraining #SavingLives #ChildDonation #MedicalTraining #HaDEA #EU #HealthUnion #EU4Health #Rarediseases #health

Last weekend, Ms. Paloma Martínez, Paediatric referring nurse specialist and case manager at the Transition Consultation for Solid Organ Transplantation at La Paz University Hospital in Madrid, attended the Masterclass on Transition in Porto organised by European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN). In this event participated among other speakers Dr. Sandra Ferreira, Paediatric Hepatologist in Coimbra, who made reference to the TransplantChild document on Recommendations on Implementation of Transition and Transfer Program in paediatric Transplantation. You can access the document at the following link: https://lnkd.in/d9wZxnD7 European Health and Digital Executive Agency (HaDEA) #ERN #ERNTransplantChild #ERNs #HealthCareProfessionals #ESPGHAN #Gastroenterology #PortoMasterclass #HaDEA #EU #HealthUnion #EU4Health #Rarediseases #health

We would like to invite you to our Monthly Live Case Discussion that will be held on Thursday, 28th November 2024 at 14:00 CEST. For this session we have the valuable participation of Dr. Szendile Lóth, HP, Pediatric Gastroenterologist at Semmelweis University, Department of Pediatrics in Budapest, Hungary. Dr. Lóth will present a case of "HHV-6: The Virus That Won't Leave Us". If you would like to attend this interesting activity, simply send us an email to: coordination@transplantchild.eu and we will send you the access link. #ERNTransplantChild #LiveCaseDiscussion #education #training #LCD #Healthcareprofessionals #Gastroenterology #Humanherpesvirus6

Yesterday we hold the 17th TransplantChild Board of the Network online. (Image n1) Dr. Francisco Hernández, ERN TransplantChild Coordinator, and Dr. Susana Noval, Deputy Director of La Paz University Mother and Child Hospital, opened the event by welcoming the attendees. (Image n2) We had the opportunity to attend the presentations of: Ms. Marta Casales, TransplantChild Project Manager, showed the design of the Network Mind Map. (Image n3) Dr. José Jonay Ojeda, ERN TransplantChild Co-Coordinator, presented the report on indicators for the first year of the project and the next steps of the WP3-Evaluation. (Image n4) Dr. Sara Mosca, co-leader of WP2-Dissemination, from Unidade Local de Saúde de Santo António in Porto (Portugal) explained the status of the activities they are carrying out. (Image n5) Dr. Esteban Frauca, Leader of the WP4 from La Paz University Hospital, presented the status of the CPMS and the news for the coming months. (Image n6) Dr. Yadira Bravo, Medical Advisor at La Paz University Hospital, updated the work of the last months in the PETER Registry. (Image n7) Prof. Kaliciński, Leader of the WP6-Education & Training from The Children's Memorial Health Institute in Warsaw, explained the status of the activities they are carrying out. (Image n8) Prof. Lorenzo D’Antiga, Co-Leader of the WP7-CPG and CDST from Pope John XXIII Hospital in Bergamo, developed advances in Clinical Practice Guidelines and Clinical Decision Support Tools. (Image n9) Prof. Kaliciński, Leader of the WP8, mentioned the meetings and visits he and his centre (The Children's Memorial Health Institute in Warsaw) had with Healthcare Units in Ukraine. (Image n10) Dr. Norman Junge, co-leader of the WP10 from Hannover Medical School in Germany, presented the activities they are carrying out with the different patient associations. (Image n11) Dr. Yadira Bravo, TransplantChild Medical Advisor at La Paz University Hospital, showed the progress of JARDIN Joint Action, the Joint Action on Integration of #ERNs into National Health Care System. (Image n12) Dr. José Jonay Ojeda, ERN TransplantChild Co-Coordinator announced that the next and the 18th Board of the Network will be held online on: Tuesday, June 3rd 2025. Please save the date in your agenda! (Image n13) Many thanks to the representatives of the 31 HCPs from 17 countries who attended the Board. #17BoN_TransplantChild #ERN #health #ERNTransplantChild #ERNs #HealthCareProfessionals #HaDEA #EU #HealthUnion #EU4Health #Rarediseases

The next TransplantChild webinar will be held on Tuesday 26th November at 15.00 CET. This webinar on "Joint Action JARDIN" will be presented by Dr. Yadira Bravo, ERN TransplantChild Medical Advisor at La Paz University Hospital in Madrid, Spain. This event is especially aimed at all types of audiences related to ERNs: clinicians and other health care professionals, project managers, managers of Health Care Providers, patients' associations... as Dr. Bravo will explain what the JARDIN Joint Action project consists of. Save the link to join the meeting: bit.ly/3AKbR0q We hope to see you online! #ERNTransplantChild #Webinar #ERNs #HealthCareProfessionals #JARDIN #HaDEA #EU #HealthUnion #EU4Health #Rarediseases