When your child receives a diagnosis of a rare and life-limiting condition with no known cure, it can be devastating. But it can also be a source of strength and resilience. Discover how one family found hope and community amidst the uncertainty. Read the full story in the latest edition of RARE Revolution here. https://lnkd.in/dewV2v4f #RareDiseases #MitochondrialDisease RARE Revolution Magazine
UCB’s Post
More Relevant Posts
-
The new science of inflammation: sometimes hero, sometimes enemy - Part II My "Longevity Tips" newsletter gives one actionable, easy to do tip each month, based upon what I've learned through travels to longest living populations plus the best of science. The April issue will publish soon. You can get it here: https://lnkd.in/g8Ch85xs #longevity #diseasesofinflammation #inflammation Please share with one other person if you found this helpful.
To view or add a comment, sign in
-
Dr. Robert Hamilton’s CANet-funded research focuses on expanding the understanding of inherited arrhythmia conditions that lead to sudden death and improving their diagnosis. “We hope that it'll first be a better diagnosis or at least an earlier and simpler diagnosis.” Listen to #CANetTickerTalk to learn more about his innovative research - https://lnkd.in/gtYDdrgY #arrhythmias
To view or add a comment, sign in
-
May is #StrokeAwarenessMonth, an important time to raise awareness about #stroke research. #NINDS is committed to understanding the biological mechanisms underlying stroke, as well as advancing stroke prevention, treatment, and recovery. Read the latest Director's Message to learn more about how NINDS is working to disrupt stroke. https://go.nih.gov/Lwc2DK1
To view or add a comment, sign in
-
Early diagnosis of alpha-mannosidosis is key to better outcomes. Learn how to spot the signs at r.chiesi.com/AM15.
To view or add a comment, sign in
-
Hello everyone 🙋♀️, Exciting news from the world of science! 🎉 Researchers have discovered that BMP-7, a substance involved in muscle growth, might have a crucial role in regenerating heart tissue 💪❤️. In simpler terms, this could lead to new ways to repair our hearts after injuries, especially for our older members. It's an exciting prospect that could add a new dimension to how we tackle heart disease in the future. Keep in mind, this is just the beginning, and there's a lot more research to be done, but this is certainly an exciting start. Stay well everyone, Longevity Lily 🌸 For more details, click on the link below: https://lnkd.in/eMJPmGEX #longevitylily #longevity #agingresearch #stayyoungsociety
To view or add a comment, sign in
-
💡Did you know? If everyone in the world were 5 years younger biologically than their actual age, we could cut disease morbidity in half! Think of #aging as a key determinant of health and by focusing on a preventative approach to aging, we can greatly improve our quality of life. 🧬Discover your biological age through the most advanced and predictive aging algorithm ever created - OMICmAge, developed by TruDiagnostic in partnership with Harvard University. Visit trudiagnostic.com to order your TruAge kit today! #WeMeasureSoYouCanManage #HealthRevolution #BiologicalAge #LongevityScience
To view or add a comment, sign in
-
Yesterday, June 2nd, was Lou Gehrig Day. Lou Gehrig's Disease, also known as ALS is a progressive neurodegenerative disease for which researchers, advocates, and loved ones are working tirelessly to find a cure. To learn more about the fight to save lives watch the moving Amazon documentary For Love & Life: No Ordinary Campaign. #ALS #LouGehrigsDisease #Research #ALSDocumentary
To view or add a comment, sign in
-
Today marks Rare Disease Day, a time to raise awareness and advocate for those facing the unique challenges of living with rare diseases. One of the most pressing issues they encounter is the lack of scientific knowledge and quality information, often leading to delays in diagnosis. At IonOpticks, we recognise this critical gap and are committed to making a difference. Our specialised tools play a crucial role in advancing scientific research and discovery. By enhancing our understanding of complex biological processes, we empower the development of new medical treatments that can make a tangible difference in the lives of those affected by rare diseases. Rare Disease Day serves as a powerful reminder of the importance of advocating for these individuals as a human rights priority, both locally and globally. Together, let's work towards a more inclusive society where everyone, regardless of the rarity of their condition, receives the support and attention they deserve. #RareDiseaseDay For more, visit; https://lnkd.in/etGpncj
To view or add a comment, sign in
274,047 followers
More from this author
-
UCB partners with Ben Decter and Kristin Hanggi on a heartfelt musical about living with epilepsy: It's All Your Fault, Tyler Price!
UCB 4mo -
Embracing patient-centered research: the transformative power of partnership
UCB 5mo -
Turning awareness into action for Myasthenia Gravis Awareness Month
UCB 6mo