Rare diseases are not really rare -- over 300 million people worldwide are living with a rare condition. Nearly all of us will be touched in some way by a rare disease during our lifetime -- whether it affects ourselves, a family member, a friend, a co-worker or another member of our community. This week, Member States are consulting and negotiating on the #Resolution4Rare, calling for a Global Action Plan on Rare Diseases to ensure rare diseases are recognized and prioritized in health systems worldwide. The rare disease community has worked together to put rare diseases on the global health agenda. Now we have to ensure that Member States take up the challenge of ensuring that Persons Living with a Rare Disease have the resources they need to thrive. Please show your support for #Resolution4Rare by sharing this post!
Associate Dean for Global Engagement I Associate Professor | Researcher | Fulbright Heath Impact Scholar | Co-Lead RAIN| Co-Chair CRN| Children’s Nursing | Child Health | Rare Diseases | University College Dublin
3dI support for #Resolution4Rare by World Health Organization