Today, after 11 months, I found out that the DWP have finally reviewed my PIP renewal and made a decision.
However, I have no idea what that decision is and will not find out for another two weeks. All I got was a text from them saying the decision had been made and not to call them to find out more because they would not be able to tell me.
As soon as I read the text, several thoughts went through my mind. But I think my partner encapsulated it best in their response.
"Wow, the DWP really do just continue to be evil don't they?"
This is the organisation the government thinks it is appropriate to hand extra powers to, to trust with our banking information? A department where, quite honestly, it feels like cruelty is the point.
PIP is a benefit for disabled people to attempt to address the fact that we have significant additional costs to get to the same standard of living as non disabled people. It is a horrendous process to go through but is also a financial life line for many of us.
With that in mind, it's easy to see the kind of stress a vague "we've made a decision that will directly impact your financial future but we won't tell you it for two weeks" is going to cause. Disabled or not, very few of us would respond well to that.
Not to mention that stress often makes many disabilities worse. It can cause flare up of conditions and in general takes away a huge amount of brain space.
And most frustratingly, all of this comes at a time where people are talking about 'cutting the benefits bill'. If politicians wanted to cut the bill and/or actually help disabled people, here are things they could actually do:
- Move to a lighter touch system: AKA actually believe disabled people when they say they are disabled by their conditions. 7 in ten PIP appeals were won on the same evidence the DWP already held. How much time and resources are wasted forcing people to go through this process that could otherwise be saved?
- Make working practices accessible: There will always be some people who are unable to work, but for those of us who can, we're kept out of work by inaccessible workplaces and practices.
- Universal basic income: This has been trailed in other countries and actually makes a huge difference to so may things
- A functioning NHS
- Taxing the rich
I don't often post about PIP because the whole process and everything around it is ridiculously inhumane and honestly feels like a perpetual sword of damocles hanging over my head.
But today I'm frustrated and I'm angry. The rhetoric we've been hearing nearly constantly reduces disabled people to at best burdensome numbers. This literally costs lives. Disabled people are people!
The DWP in general needs a massive overhaul, but PIP especially. And that absolutely does not mean vouchers (a measure that will drive costs UP not down) and does not mean more assessments. It means injecting a little bit of humanity into the proceedings and moving to a holistic model of disability.