MVA Society’s Post

What a year! Last Christmas / New Year we were entrenched at GOSH on a mission to get George through his 9 rounds of chemo…with the next stop being a 5 mile journey south to Kings College Hospital for ground breaking surgery! Thanks to an amazing medical team and huge support from family, friends and of course Team George, George seems to finally be out of the woods and is on top form again! Thanks to Cancer Research UK (CRUK) for the great article below. George has been awarded the Cancer Research UK for Children & Young People Star Award for the courage he showed throughout his treatment. Youngest person treated by Nanoknife is cancer-free https://lnkd.in/eEZpedQg 2025 sees the launch of the MVA Society - the first charity dedicated to look into the ultra rare condition Mosaic Variegated Aneuploidy syndrome - which is the underlying condition George has (which lead to his cancer). We have an amazing team supporting this charity already, and this year we will start out on the journey to define a research strategy to begin to look for a treatment (currently there is no treatment). Here’s to very happy - and more importantly healthy 2025 for us all ❤️🩹 #raredisease #mvasociety #teamgeorge