ME Association’s Post

Booklet: Care and Support Plans In this free booklet, we examine the potential difficulties establishing ongoing care from the NHS. We feature a real-life example, including the recommendations for care and support plans and regular reviews in primary care taken from the NICE Guideline on ME/CFS. https://lnkd.in/e_PJ78DA #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #NICEGuideline

When thinking about NHS services what is most important to you and your family? We're helping our NHS partners by gathering your thoughts on ways in which the NHS can change. Help us by completing this short survey: https://lnkd.in/e6_unZX9

These ‘how to’ guides published by NHS England complement existing guidance and support practices and PCNs to adapt this shared knowledge to their local context and realise the benefits more quickly and easily. https://lnkd.in/eRWt9FrM

VDH offers fillable forms for healthcare providers and families. These include school entrance health forms (in several languages) and emergency action plans. Learn more at https://ow.ly/sMqV50TAF28

"Society needs to restart the conversation about how to die well: with dignity, compassion, and preferences respected". We were pleased to see End of Life Care feature in the recently published independent Investigation of the NHS in England – the Darzi Review https://lnkd.in/eDrp9Q9v Its time to start those difficult advance care planning conversations to help ensure patients spend their final days in a place where they are safe and comfortable and feel at home. Start yours with us: https://lnkd.in/dyxyEvuc #AdvanceCarePlanning

Brilliant think piece by David Robinson on why both relationships and science are vital for the future of the NHS.

The Government is writing it's 10-year plan for the NHS, and they want to hear from 👉you👈. So, we've put together the tools you need to speak up for the change you want to see in general practice: 🔗 https://lnkd.in/gyiM7YTB You understand more than anyone else the problems facing the NHS. But we need to make sure decision makers understand this too and take the right action to fix them. We have until the 2nd of December to make sure they hear the voice of general practice loud and clear. By coming together and responding directly to the consultation, sharing examples of best practice, attending one of our consultation workshops or encouraging your patients to respond, we can create lasting positive change.

The Hydrocephalus Association recently published a policy brief with the National Partnership for Pediatric to Adult Care Transition (NPPACT) titled: Ensuring Successful Transitions to Adult Care for Young Adults with Special Healthcare Needs. The piece looks into the challenges faced by young adult patients with complex needs as they transition to the adult healthcare system along with solutions to address the issue. Read the full policy brief: https://ow.ly/bliC50U6k8J. #healthcarepolicy #accesstocare

'Openness around quality and outcomes on a scale like never before is needed to understand and solve problems, prevent harm and complexity, focus resources effectively, tackle the big issues, and restore public confidence in the NHS'. Continue reading below. #DigitalTransformation #NHS #DigitalHealth #RPA #ITSolutions

NHS England has produced guides for practices and primary care networks (PCNs) across the country on tested new systems, processes and approaches that are helping the transformation to modern general practice. Find out more: https://lnkd.in/duqMj73z