LifeArc’s Post

**Did you know?** 🤔 Research advancements in Cystic Fibrosis (CF) have not only improved the lives of those living with CF but are also opening doors to breakthroughs in treating other genetic diseases, like muscular dystrophy and sickle cell anemia. The science behind CF is paving the way for new therapies that could transform the future of medicine! As part of the **STANDOUT Class of 2024**, I’m proud to raise awareness and support for these life-changing advancements. The work we do today doesn’t just benefit those with CF—it helps countless others as well! 💜 Want to learn more or support the cause? Check out my page here: https://lnkd.in/eibzaKTQ #FunFact #CysticFibrosis #DidYouKnow #CureCF #GeneticResearch #Healthcare #STANDOUT #MakeADifference

Delving into the complex world of maternal alloimmunization, the recent article "Alloimmunization to Low and High Prevalence Blood Group Antigens: Rare Causes of Hemolytic Disease of the Fetus and Newborn" presents a groundbreaking exploration of uncommon blood group antibodies. These rare cases challenge obstetricians, neonatologists, and transfusion specialists alike. The authors meticulously outline how these antibodies are identified and monitored, underscoring the vital collaboration required for favorable clinical outcomes. Access the full study here: https://lnkd.in/eYp8W429 As we strive for better understanding and solutions, consider supporting the RareAI Institute's efforts to advance research in rare conditions. Donate here: https://lnkd.in/eJDi8V-M

World Sickle Cell Day: Spreading Awareness and Hope. Observed on June 19th, World Sickle Cell Day raises awareness about sickle cell disease, a genetic blood disorder affecting millions. This day focuses on educating people about the condition, promoting early diagnosis, and improving the quality of life for those affected. Communities and organizations come together to share information, support research, and encourage testing for sickle cell traits. It’s a time to honor the resilience of those living with the disease and recognize the efforts of caregivers and healthcare providers. By participating in awareness events, donating blood, and sharing information, we can make a significant impact and work towards better treatments and a cure for sickle cell disease.

Mesothelioma Awareness Day, observed on September 26 each year, was established by the Mesothelioma Applied Research Foundation (MARF) in 2004 to raise awareness about mesothelioma, a rare and aggressive cancer. This cancer affects the mesothelium, a thin tissue layer covering internal organs, and is primarily caused by asbestos exposure. Asbestos, a group of naturally occurring minerals, forms long, strong fibers that, when inhaled, can lead to mesothelioma. The disease has a latency period of 20 to 50 years, so symptoms like chest pain, shortness of breath, cough, and fatigue often appear decades after exposure, making early detection difficult. To support the cause, individuals can educate the public, encourage research, and support victims and their families. Learn more: https://lnkd.in/gYHureP4 #Mesothelioma #AsbestosAwareness #SupportTheCause

How exciting it is to see we have over 18,000 followers!      In lieu of using this as a platform to promote ourselves, we’d love to shine the light on people living with rare and less common cancers in Australia.      Imagine finding out you have a cancer so rare that there’s no information, education or treatment out there for you to understand your disease or improve your chances of living?     If you know anyone who needs support, Rare Cancers Australia is a not-for-profit organisation whose purpose is to improve the lives and health outcomes of all people living with rare or less common cancers. So that no one feels alone and everyone is given the best possible chance to survive cancer.  If you would like to increase the chances for these patients to gain access to non-funded treatment, follow this link - https://lnkd.in/gcv-2ZhZ      To our 18,000 followers, please do like, share or repost to extend support for these patients. Remember, these patients are someone’s child, sibling, parent or friend. We can all contribute to making a difference.   

Today 08 mai it's oviarian cancer Day , the world ovarian cancer coalition call for a petition . Lastest projections indicate that ovarian cancer incidence and mortality are set to jump by 55% and almost 70% respectively by 2050 , with low-and middle-income countries bearing the greatest burden . I Call upon the #WHO and global health leaders to Recognise ovarian cancer as a Global Heath Priority #petition #ovarian_cancer #women_health https://lnkd.in/gbtMQ6wH

A recent publication in the Journal of Medical Case Reports by Yuyi Lai sheds light on a successful application of bronchoalveolar lavage fluid cytomorphology in diagnosing the elusive Nocardia otitidiscaviarum in an immunocompetent patient. This breakthrough highlights the pivotal role of cell morphology as a preliminary screening tool, overcoming traditional diagnostic challenges associated with nocardiosis. Such advancements are crucial in improving early detection and treatment outcomes. For details, see the article at [PubMed](https://lnkd.in/egrqYTSf), DOI: 10.1186/s13256-024-04920-6, dated November 29, 2024. Support continued research in rare diseases by donating at RareAI: [donate here](https://lnkd.in/eJDi8V-M).

Very important recommendations for future work aiming at securing adequate and timely palliative care for those who need it. Page 6 is a good summary. The document is useful not just because it summarises key messages but also because it explains how ongoing EU funded projects contribute to addressing several of the challenges.

Today the team all wore blue to show support for ActionMeso's #GoBlueForMeso campaign, which coincided with #ActionMesotheliomaDay. The aim of the campaign is to get people talking about mesothelioma, a cancer caused by exposure to asbestos. Did you know that mesothelioma is actually the 19th most common cause of cancer death in the UK with 2,400 people dying from it every year? We actually think the figure is much higher than this, with some mesothelioma deaths being logged as 'lung cancer', 'pneumonia' or other lung related diseases. Asbestos is still in around 85% of schools, 90% of hospitals and many other public and private buildings built before the ban in 1999. Let's keep the conversation going and remove asbestos from buildings and our lives safely. To find out more about ActionMeso, go to https://actionmeso.org/. #asbestos #mesothelioma

#SickleCellAwarenessDay: Raising awareness for a stronger tomorrow Today, on Sickle Cell Awareness Day, we recognize the strength and resilience of those living with sickle cell disease. Sickle cell disease is a debilitating inherited blood disorder that affects millions of people worldwide. Here are some facts about sickle cell disease: It is a genetic disorder that causes red blood cells to become sickle-shaped. These sickle-shaped cells can block blood flow and cause severe pain, organ damage, and other complications. There is currently no cure for sickle cell disease, but there are treatments that can help manage the symptoms. How you can help: Educate yourself and others about sickle cell disease. Donate to organizations that support sickle cell research and advocacy. Share this post to help raise awareness. Together, we can make a difference in the lives of those living with sickle cell disease. #SickleCellDisease #Healthcare #Awareness #Support #Strength