Epilepsy Foundation of Southeast Tennessee’s Post

At BridgeBio one of our most important cultural rituals are Patient Days. Hearing directly from patients living with the conditions we are targeting energizes and humbles us all. As someone new to drug development I was very surprised to learn this isn't done by every company. I can't wait for that to change - please let me know if you are interested in doing this for your drug development program so we can share our approach! #patientsfirst

🙄 It's sad that I feel the need to go out of my way to congratulate an organization for truly putting patients first. However, the reality is that many so-called "𝐩𝐚𝐭𝐢𝐞𝐧𝐭-𝐜𝐞𝐧𝐭𝐞𝐫𝐞𝐝" organizations fail to include #patients in the conversation. Great work, BridgeBio, for incorporating perspectives and feedback that genuinely matters! 𝘈𝘯 𝘰𝘳𝘨𝘢𝘯𝘪𝘻𝘢𝘵𝘪𝘰𝘯 𝘪𝘴𝘯'𝘵 𝘵𝘳𝘶𝘭𝘺 𝘱𝘢𝘵𝘪𝘦𝘯𝘵-𝘧𝘪𝘳𝘴𝘵 𝘶𝘯𝘵𝘪𝘭 𝘵𝘩𝘦 𝘱𝘢𝘵𝘪𝘦𝘯𝘵𝘴 𝘵𝘩𝘦𝘮𝘴𝘦𝘭𝘷𝘦𝘴 𝘧𝘦𝘦𝘭 𝘪𝘯𝘤𝘭𝘶𝘥𝘦𝘥 𝘢𝘯𝘥 𝘩𝘦𝘢𝘳𝘥. #Healthcare #PatientCenteredCare #BridgeBio #PatientAdvocacy #HealthcareInnovation #PatientInsights #LGMD

Great way to end this conference- with a full exploration and discussion of different perspectives on prolonging grief disorder.

That's a wonderful initiative.👍. Even in Japan, AbbVie ‘s head office building turned on blue light during April, ( https://lnkd.in/gm-qzVKN ) but about other activities they only said "we didn't know" when I talked to them. And they also said that they would been banned to be direct to patients. Is it difficult in Japan? If they start doing it all over the world, I feel sorry leaving the sponsor only to abbvie. I hope we patients can also become effective stakeholders, but there is no system called fundraising, and it is not socially acceptable in Japan. ーーーーーーーーーーー About AbbVie in Parkinson’s At AbbVie, we are aiming to transform Parkinson's disease care and improve outcomes for those living with this progressive condition. We support individuals living with Parkinson's, addressing the physical, mental, and emotional impacts on their lives. With over 30 years of neuroscience experience, we collaborate to deliver products, education, and resources that preserve one's personhood. For more information about AbbVie in Parkinson's, visit https://lnkd.in/gpXBEfHd

#HappyEaster to all who celebrate! We thought: What better way to celebrate this day than to share the story of a young person who got a new lease on life? Read our latest blog from Sarcoma patient, Matt Sha. https://lnkd.in/dUH_cA_c

🧠 Exploring New Frontiers in Alzheimer's Research 🧠 We're excited to share this insightful Medicine Grand Rounds presentation featuring Huntington Potter and Brice McConnell from the CU Alzheimer's and Cognition Center. They discuss Sargramostim/GM-CSF as a potential treatment for Alzheimer's disease, highlighting research from preclinical trials to ongoing Phase II clinical trials. This research could pave the way for new therapies in the fight against Alzheimer’s. A must-watch for anyone interested in neurodegenerative diseases! #AlzheimersResearch #Neurology #ClinicalTrials #CUAnschutz 🎥 Watch the full presentation here:

New #ESOBlog: Blanca Fuentes, Chair of the Council of Fellows and a leading figure in stroke care, shares her insights on the vital work of the Council in advancing stroke research and education across Europe. Read the full interview on the #ESOBlog to learn more about the impact of the Council of Fellows: https://ow.ly/tZ3Y50UkFjp #stroke #strokecare #strokeresearch

Looking for rebound nystagmus? 👁️ Rebound nystagmus is a type of primary position nystagmus that occurs after prolonged eccentric gaze holding. The examiner looks for a nystagmus that beats away from the previous direction of gaze holding, lasting for at least 5 beats. Clinicians can see an example of rebound nystagmus on this youtube, generously made available by the Moran Clinical Ophthalmology Resources for Education (CORE) collection (Note: this video is intended for education and training in the discipline of Clinical Ophthalmology). Using IR video goggles like Vesticam2, can make it easier to see nystagmus. https://lnkd.in/epcpkM5x #Nystagmus #vesticam #vestibular #neurology

🎥 Excited to share this insightful video by the American Cancer Society (ACS). It underscores the critical importance of diversity and equity in breast cancer research. Ensuring diverse representation in research not only enhances scientific understanding but also leads to better, more inclusive healthcare outcomes for all. Let’s amplify the conversation and continue striving for equity in every aspect of cancer research. #BreastCancerResearch #DiversityInResearch #EquityInHealthcare

We now have an eighth FDA approved therapy for DMD! Find the press release from the FDA, information about other FDA approved therapies, and many other helpful resources for Duchenne muscular dystrophy, by visiting www.DMDResources.org! P.S. This is an amature, neutral website I personally created just to keep track of important resources for DMD! If there are other helpful resources you think would be valuable to our community, please use the form on the website to have them added! Nothing listed is an endorsement in any way. It's just a collection of links to resources, including: treatments, clinical trials, nonprofit organizations, events, and more!