Donor Relations Group’s Post

Gen AI is a product of human ingenuity and technology. It’s an example of how humans have extended their capabilities beyond the biological realm, creating tools that can not only mimic human actions but also assist in achieving tasks that may be too complex or time-consuming for humans alone. Let’s meet at the event to know more on Gen AI from experts Kare AI Inc.

💻 CAPC Virtual Office Hours 'Delivering Palliative Care in Rural and Safety-Net Organizations' with Allison Silvers, MBA and Sonia Malhotra, MD, MS, FAAP 🔗 https://ow.ly/WFOF50TS0we Palliative care programs in rural and safety-net organizations often serve patients with more intense needs yet face even more significant resource constraints. This small-group consulting call convenes palliative care clinicians from these settings to ask questions, discuss unique challenges, and share creative solutions. Anticipated topics for this session include: - Defining your target population for the greatest impact - Garnering resources by making the case, fundraising, and collaborating with colleagues - Finding joy and meaning in the work and celebrating the wins

Can you believe it's been 10 years since the Ice Bucket Challenge? As we reflect on this milestone and celebrate ALS Awareness Month, it's incredible to see how far we've come together. Before the Ice Bucket Challenge, the lack of ALS awareness only added to the struggle that individuals and their families face. When the Ice Bucket Challenge happened, people knew what ALS was. It had a ripple effect, increasing care, support, and services.  Communities rallied together, creating a surge in awareness and compassion like never before. Families affected by ALS found their voices amplified, and support poured in from all corners.  Because of the generosity and kindness from this community, we’ve been able to expand access to vital assistance programs and add new services to offer much-needed support and hope to families facing this relentless disease. Before the Ice Bucket Challenge there were often extensive waiting lists for essential equipment like mobility aids and communication devices. With increased funding, we've been able to invest in areas that will have immediate impact, like providing individuals with the equipment they need to maintain their independence.  But our work is far from over. Despite the progress we've achieved over the past decade, there are still many hurdles to overcome. As we strive to see more support for families living with ALS, we invite you to join us in our mission.

Did you know that last year we had over 9000 donors? Donor support is vital and allows us to have the right equipment and care spaces to provide the best care in these life-defining moments.   Read about our Foundation Update in our year in review: https://lnkd.in/d7HDFRre

Today is #ClinicalTrialsDay. In a world where more and more information are, presumably, obtained through all sorts of tech solutions, #machinelearning, #bigdata #AI, there is still a need for "old fashion" trials. I have seen several times before where data driven analysis do actually produce interesting hypotheses, but how can we trust them? Clinical trials quantifies the #scientific procedure that is needed to find out IF there actaually is a real effect or just a coincidence. Good clinical trials also requires good data handling, data manipulation, analysis plans, procedures for analysis and reporting. #statistics #science

While we're out, we invite you to share in one to two words what you are most optimistic about for 2025. Maybe your team is growing, you are starting a clinical trial or expanding your portfolio, excited about a transformative trend in the industry, or maybe you’re optimistic about changes to the capital markets or regulatory landscape. Tell us here: https://hubs.la/Q030ysbT0

🎀✨ Exciting News! ✂️🎉 We officially cut the ribbon on the nation’s first children and families recuperative care center for the unhoused! 🎀 Partnering with CalOptima, we’ll be able to provide a safe place for children and families to heal after the hospital. A huge thank you to our incredible team, supporters, and community for making this dream a reality. 🙌 🙏Special thanks to our speakers, Dr. Jim O’Connell, President of Boston Health Care for the Homeless Program and Assistant Professor of Medicine at Harvard Medical School, Michael Hunn, CEO of CalOptima and Dr. Pooja Bhalla, CEO of Illumination Foundation 🔗 Learn more about the innovative center at https://lnkd.in/gezXje2M 💛 We hope that this revolutionary reimbursement model will serve as an example for additional recuperative care sites for children and families across the country. -Dr. Pooja Bhalla, CEO of Illumination Foundation

If you look up the definition of a rural health leader, Steve Tenhouse, FACHE would be the name you read. In my book, the OG.

How do you turn complex oral health data into a powerful tool for change? 🦷💡 We're thrilled to feature another 2024 Creatives for Community grant recipient: Dientes Community Dental Care We partnered with this impactful organization to design a dynamic presentation deck for their 2024 Oral Health Summit. This deck helped them share vital data and insights with stakeholders, driving meaningful action for better oral health outcomes across Santa Cruz County. 📊 With engaging data visualizations and clear storytelling, we’re proud to support their mission to make oral health information accessible and impactful. 💡 2025 Creatives for Community grant applications open in January! Nonprofits in Monterey, San Benito, and Santa Cruz Counties are eligible. 👉 Explore past projects or learn more about the program at https://bit.ly/4gtz727. What’s one way your organization transforms complex data into meaningful insights for your audience? Share your strategies below! #WaltzCreative #OralHealth #NonprofitBranding #DataStorytelling #CommunityImpact

Why am I constantly talking about the importance of integrating advocacy groups across the entire rare disease ecosystem? Because when you empower advocacy groups, you empower patients; and when you empower patients, you change the world. In 2019, CZI invested in 30 patient groups which, on average, "were less than 6 years old with average operating budgets of $375,000. The majority were entirely volunteer-led and few leaders of these organizations had prior non-profit or scientific expertise." Five years later it takes 80 pages just to SUMMARIZE what cycle 1 of the RareAsOne network has accomplished (https://czi.co/3DmzZak). Their impact across rare disease is immeasurable, but here are just a few stats on what they have done.