💻 Register now for the final hybrid event of "Health Research and secondary uses: Facing European Health Data Space Regulation." These have been a series of webinars organised by Cátedra Privacidad y Transformación Digital Microsoft-UV, The CHAIMELEON Project and #EUCAIM. The final event is a seminar designed with the following objectives: 🔹 To define the requirements that data lakes for health research should meet, taking into account, the current legislation and the developing framework. 🔹 To reflect on the strategic definition of data governance frameworks. 🔹 To consider the state of progress of the European Regulation proposed by the Commission. 📅 Thursday, January 16th 🔗 You can register for the final event here: https://lnkd.in/eiq4bqQZ #DigitalEurope #EUfunded European Health and Digital Executive Agency (HaDEA)
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Your health data is now public domain. Or....? The European Health Data Space (EHDS) just got approved, and will be working towards electronic health data across EU member states. This means that access to health data can be transferred to: Individuals (their own) Healthcare organizations Research organizations Innovation initiatives Policymakers But, it will not mean that everyone gets access to everything. The EHDS builds on: 🤺 GPDR 🏰 Data Governance Act 💽 Data Act ℹ Network and Information Systems Directive And aims to provide a trustworthy and secure setting to access and process health data. It is expected to save the EU billions, but also improve health and save lives. But, to achieve this, data needs to be digitalized, secured, and interoperable. And, when that is done, we can start talking about truly getting the benefits of artificial intelligence in healthcare. How do you think the EHDS will change European healthcare?
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I love this post Sigrid Berge van Rooijen the hand notes are so accurate :) As we all know, the approval of the European Health Data Space (EHDS) marks a significant step forward in digitizing and harmonizing health data across EU member states. This initiative paves the way for improved healthcare delivery and sets the stage for advanced research and innovation. However, the very foundation of these ambitious goals rests upon one important aspect: 👉The integrity and quality of the underlying data. This is where the "Data First, AI Later" movement becomes crucial. As we embrace the possibilities of the EHDS, we must advocate for a paradigm shift where data integrity and quality are prioritized before leveraging artificial intelligence in healthcare. ✅ By ensuring data is accurate, secure, and interoperable, we mitigate the risks associated with premature AI deployment, such as biased outcomes or misinformed policy decisions. Sheena Arora Sofia Sousa Roque More about us here: https://lnkd.in/dYZBbnsY
Your health data is now public domain. Or....? The European Health Data Space (EHDS) just got approved, and will be working towards electronic health data across EU member states. This means that access to health data can be transferred to: Individuals (their own) Healthcare organizations Research organizations Innovation initiatives Policymakers But, it will not mean that everyone gets access to everything. The EHDS builds on: 🤺 GPDR 🏰 Data Governance Act 💽 Data Act ℹ Network and Information Systems Directive And aims to provide a trustworthy and secure setting to access and process health data. It is expected to save the EU billions, but also improve health and save lives. But, to achieve this, data needs to be digitalized, secured, and interoperable. And, when that is done, we can start talking about truly getting the benefits of artificial intelligence in healthcare. How do you think the EHDS will change European healthcare?
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Insightful overview! We in EU have an impressive umbrella for health data exchange and access, now. How to bridge the gaps between the countries, regions, institutions in order to bring EHDS to live? This question is still valid and urgent…
Your health data is now public domain. Or....? The European Health Data Space (EHDS) just got approved, and will be working towards electronic health data across EU member states. This means that access to health data can be transferred to: Individuals (their own) Healthcare organizations Research organizations Innovation initiatives Policymakers But, it will not mean that everyone gets access to everything. The EHDS builds on: 🤺 GPDR 🏰 Data Governance Act 💽 Data Act ℹ Network and Information Systems Directive And aims to provide a trustworthy and secure setting to access and process health data. It is expected to save the EU billions, but also improve health and save lives. But, to achieve this, data needs to be digitalized, secured, and interoperable. And, when that is done, we can start talking about truly getting the benefits of artificial intelligence in healthcare. How do you think the EHDS will change European healthcare?
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Healthcare data exchange and interoperability are now a trend. Thanks for sharing this, because it strengthens my belief that Indonesia is now on the right track. The implementation of Satusehat is a major step for the Indonesian healthcare industry towards interoperability to unleash the potential of data exchange, especially in clinical data. The most important thing about this is that WE OWN OUR DATA! not managed by the healthcare facility, so now it will be very easy for us to do a medical treatment everywhere without repeating the same test over and over again when we move from one facility to another. The great thing about this is that in the future, when every country is already implementing mature interoperability and data exchange, the next benefit that we can get is the ease of the International Patient Summary (IPS), which will help us when we travel abroad. This dream will not be realized without the support of every stakeholder in every country. Awareness and motivation to change must be present, starting with the user, business owner (healthcare facilities) and government. But what is also important is having a capable technology partner who has not only a good capability, cutting-edge technology, and great security but also an excellent interoperable and data exchange capability that follows a global standard called HL7. Find out more about interoperable solution with MHNexus Sdn Bhd
Your health data is now public domain. Or....? The European Health Data Space (EHDS) just got approved, and will be working towards electronic health data across EU member states. This means that access to health data can be transferred to: Individuals (their own) Healthcare organizations Research organizations Innovation initiatives Policymakers But, it will not mean that everyone gets access to everything. The EHDS builds on: GPDR Data Governance Act Data Act Network and Information Systems Directive And aims to provide a trustworthy and secure setting to access and process health data. It is expected to save the EU billions, but also improve health and save lives. But, to achieve this, data needs to be digitalized, secured, and interoperable. And, when that is done, we can start talking about truly getting the benefits of artificial intelligence in healthcare. How do you think the EHDS will change European healthcare?
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Vey Informative... transforming healthcare through data science like every data point brings us closer to better patient outcomes and personalized care.
Your health data is now public domain. Or....? The European Health Data Space (EHDS) just got approved, and will be working towards electronic health data across EU member states. This means that access to health data can be transferred to: Individuals (their own) Healthcare organizations Research organizations Innovation initiatives Policymakers But, it will not mean that everyone gets access to everything. The EHDS builds on: 🤺 GPDR 🏰 Data Governance Act 💽 Data Act ℹ Network and Information Systems Directive And aims to provide a trustworthy and secure setting to access and process health data. It is expected to save the EU billions, but also improve health and save lives. But, to achieve this, data needs to be digitalized, secured, and interoperable. And, when that is done, we can start talking about truly getting the benefits of artificial intelligence in healthcare. How do you think the EHDS will change European healthcare?
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Your health data is now public domain. Or....? The European Health Data Space (EHDS) just got approved, and will be working towards electronic health data across EU member states. This means that access to health data can be transferred to: Individuals (their own) Healthcare organizations Research organizations Innovation initiatives Policymakers But, it will not mean that everyone gets access to everything. The EHDS builds on: GPDR Data Governance Act Data Act Network and Information Systems Directive And aims to provide a trustworthy and secure setting to access and process health data. It is expected to save the EU billions, but also improve health and save lives. But, to achieve this, data needs to be digitalized, secured, and interoperable. And, when that is done, we can start talking about truly getting the benefits of artificial intelligence in healthcare. How do you think the EHDS will change European healthcare?
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All of EU’s health data will be available. Not so fast… Last week the European Health Data Space was endorsed by the Council of the EU and the European Parliament. This means that access to health data will be simplified for: Individuals (their own) Healthcare organizations Research organizations Innovation initiatives Policymakers But, it will not mean that everyone gets access to everything. The European Health Data Space (EHDS) builds on: GPDR Data Governance Act Data Act Network and Information Systems Directive And aims to provide a trustworthy and secure setting to access and process health data. It is expected to save the EU billions, but also improve health and save lives. But, to achieve this, data needs to be digitalized, secured, and interoperable. And, when that is done, we can start talking about truly getting the benefits of artificial intelligence in healthcare. What are you doing to get ready for healthcare 2.0?
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OK, where is FHIR? FHIR is Treminology.service as process from ValueSet to CodeSystem (ISO11179, Meta-data repository) and FHIR.WorkFlow.service (ISO42010) as new art of AI like Software Development.
Your health data is now public domain. Or....? The European Health Data Space (EHDS) just got approved, and will be working towards electronic health data across EU member states. This means that access to health data can be transferred to: Individuals (their own) Healthcare organizations Research organizations Innovation initiatives Policymakers But, it will not mean that everyone gets access to everything. The EHDS builds on: 🤺 GPDR 🏰 Data Governance Act 💽 Data Act ℹ Network and Information Systems Directive And aims to provide a trustworthy and secure setting to access and process health data. It is expected to save the EU billions, but also improve health and save lives. But, to achieve this, data needs to be digitalized, secured, and interoperable. And, when that is done, we can start talking about truly getting the benefits of artificial intelligence in healthcare. How do you think the EHDS will change European healthcare?
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🇪🇺 European Health Data Space: Uniform Access to European Healthcare Data for Research and AI ✨ At #BIOEurope 2024, Timo Kanninen joined the panel session "Waiting for Magic: European Health Data Space (#EHDS)", spotlighting BC Platforms’ EHDS-ready solutions. These innovations are set to support data holders—from university hospitals to national systems—in navigating #EHDS2, designed to replace national laws controlling healthcare data usage for research and to standardize cross-border data access across the EU. 📣 Read Timo's abstract here: https://bit.ly/40BI4BM 🔍 Discover more about BC Platforms’ EHDS-ready platform that: 🔹 Delivers #federated technology and robust #security measures globally 🔹 Provides a hardware-agnostic solution, compatible with both local and national Secure Data Environments (#SDEs) 🔹 Offers advanced #research #analytics capabilities within secure research workspaces 🔹 Integrates AI-driven tools to meet the rising demand for EU #healthcare data Read the full press release here: https://bit.ly/40GVmwG 💬 How do you think EHDS2 will impact research in the EU?
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Nice little summary of the institutions that are to play a role in the possibly upcoming #EHDS:
🔍𝐃𝐞𝐜𝐨𝐝𝐢𝐧𝐠 𝐄𝐮𝐫𝐨𝐩𝐞𝐚𝐧 𝐇𝐞𝐚𝐥𝐭𝐡 𝐃𝐚𝐭𝐚 𝐒𝐩𝐚𝐜𝐞 (𝐄𝐇𝐃𝐒): 𝐭𝐡𝐞 𝐂𝐨𝐧𝐧𝐞𝐜𝐭𝐢𝐨𝐧𝐬 𝐁𝐞𝐭𝐰𝐞𝐞𝐧 𝐇𝐃𝐀𝐁, 𝐃𝐇𝐀, 𝐚𝐧𝐝 𝐇𝐃𝐏𝟒𝐆𝐞𝐫𝐦𝐚𝐧𝐲 In 2020, the European Union (EU) allocated two billion euros for data infrastructure investments, to counter American digital dominance. Central to this effort is the European Health Data Space (EHDS). Published in May 2022, the EHDS proposal outlines a health data sharing economy aligned with European values such as citizen-centricity and data sovereignty. It aims to establish a unified European market for #digitalhealth services, with regulations spanning member states, by 2025 ⏳. EHDS prioritizes individual control over #HealthData while ensuring fair usage. 👉 EHDS establishes a regulatory framework and delineates key roles for entities to facilitate secure, ethical, and transparent management and exchange of health data within the EU: - 𝐃𝐚𝐭𝐚 𝐇𝐨𝐥𝐝𝐞𝐫𝐬: Responsible for possessing and controlling health data. - 𝐃𝐚𝐭𝐚 𝐔𝐬𝐞𝐫𝐬: Utilize health data for various purposes. - 𝐇𝐞𝐚𝐥𝐭𝐡 𝐃𝐚𝐭𝐚 𝐀𝐜𝐜𝐞𝐬𝐬 𝐁𝐨𝐝𝐲 (𝐇𝐃𝐀𝐁): Manages access and permits for data usage. - 𝐃𝐢𝐠𝐢𝐭𝐚𝐥 𝐇𝐞𝐚𝐥𝐭𝐡 𝐀𝐮𝐭𝐡𝐨𝐫𝐢𝐭𝐲 (𝐃𝐇𝐀): Oversees digital health initiatives and compliance within the EHDS framework. While EHDS provides a regulatory framework, technical implementation falls to member states. 👉 𝐇𝐃𝐏𝟒𝐆𝐞𝐫𝐦𝐚𝐧𝐲, an EU project, aims to develop the German infrastructure for the national HDAB. This involves establishing a national data access and coordination point, enhancing the quality of health data managed by the HDAB, and creating a cross-border connection to the HealthData@EU Pilot infrastructure. Stay tuned for future posts where I'll address initiatives in other member states! For more information, visit: LinkedIn - HDP4Germany Paper from Arthur Kari, Tim Schurig and Martin Gersch - https://lnkd.in/dxveK5cP #EHDS #EuropeanHealthUnion #healthcaretransformation #healthtech #research
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