Registration is now open for the 2025 Stargardt Summit being held on Saturday, February 22, 2025. We are honored to sponsor this informative in-person and virtual event. Learn more: https://lnkd.in/emKfrRcu #AlkeusPharma #Stargardt #patientvoices #StargardtSummit2025
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Learn more about Prenosis and the Sepsis Immunoscore™ at #ADLM2024. We will be demonstrating the Sepsis Immunoscore™ in Booth #2003. Get in touch: https://lnkd.in/dD2bdnFe #PrenosisatADLM2024 #navifyatADLM2024 #LabDiagnostics
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How NF2 Affects me! ...... is making a return as we raise awareness for Rare Disease Day 2025 project fir NF2 BioSolutions UK & Europe Want to take part? Send me a pic of yourself (doesn't have to be camera facing), but one you are happy to share and a small write up of your journey or about a part of how NF2 affects you. Could be Avastin, emotional effects, family, something in every day life, physical, side effects etc - really its up to you! - Email both to joanne@nf2biosolutions.org And Bit announcement not only are we running this series on social media but hot off the press we have ...... (drum roll!) HOW NF2 AFFECTS ME - THE EXHIBITION Yes plans are being made for showcasing and raising awareness as part of an exhibition for Rare Disease Day 2025. We would love to see more ethnic minority and stories from guys - but are delighted for anyone who wants to share their part. ..... and thankyou! #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey #StrongerTogetherAgainstNF2
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Optimizing the efficiency and reach of secured funding is crucial in a highly competitive market for early-stage capital. Learn how biotechs can maximize their funds and de-risk their rare disease development programs through strategic trial design and engagement with regulators. Read more! https://ow.ly/TMSJ50QWEAY
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It's Aortic Disease Awareness Month, and today, we want to share an informative presentation by Dr. Kristin Watson. You can view our most recent interview with Dr. Watson from September 3rd by going to our AHTV YouTube channel. https://lnkd.in/eUs-qrcR Click the attachment below to view her easy-to-understand presentation on Common Medications for Aortic Disease. It includes many, if not all, of the various medications that community members are prescribed, as well as potential side effects. https://lnkd.in/eNkagfWz... For additional information, check out our patient guide by downloading a copy today: https://lnkd.in/giNmVcNA #thinkaortathinkfamily #thinkaorta #aortichope #aorticdiseaseawarenessmonth #aortaed
AHTV Live Q&A with Dr. Kristin Watson
https://www.youtube.com/
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Why do some countries seem to be stuck in a cycle of Neglected Tropical Diseases outbreaks? WHO has identified that without precise and real-time data, many areas face delays in responding to Neglected Tropical Diseases (NTDs) outbreaks, which can allow diseases to spread further. Clinical research platforms like Castor's are designed to help researchers efficiently gather comprehensive, accurate data, supporting swift interventions and progress toward Neglected Tropical Disease eradication goals. Oh, and did we mention that through Castor for Impact, our platform is free / heavily discounted for entities running clinical research on a Neglected Tropical Disease? Find out more, here > https://lnkd.in/d-FbJpyS Read more about the state of NTDs from the 2024 WHO Report > https://lnkd.in/e9bEHZ6i
Planning Clinical Research on a NTD? Get *Free Access to our Platform >
castoredc.com
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📊 Last Tuesday, we hosted our Annual General Meeting, providing shareholders with an overview of Microbio’s progress and achievements over the past year. From milestone distributor agreements to advancements in sepsis-related pathogen detection, 2024 has been a year of growth and impact. Here’s to continuing our journey of improving patient outcomes worldwide! #MicrobioAGM #PathogenDetection #SepsisInnovation
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In today's digital-first world, establishing trust with patients is increasingly important for enrolling them in clinical studies. In this webinar, you will learn practical and effective ways to build trust with patients!
[Upcoming webinar!] Join us for "Building Trust with Rare Disease Patients – Strategies to Accelerate Clinical Trial Enrollment," featuring Taylor Lipsich, Director of Client Operations at PatientWing, with Anna Eisenberg, Director of Life Science Business Development at Morningside, A Questel Company. Don't miss this opportunity to gain expert insights and strategies. Register now! https://lnkd.in/gqfzUh3D #ClinicalTrials #PatientEngagement #RareDisease #LifeSciences #l10n #ClinicalTranslation #PatientRecruitment
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Aug 4 2024 is the World NTM Awareness Day. Today, MicuRx joins the global community in raising awareness for non-tuberculous mycobacteria (NTM), a chronic rare lung disease with significant unmet medical needs. We are committed to work with patients, healthcare professionals, researchers to provide new treatment options for NTM. #NTM #MicuRx #MRX-5
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🎙️ Bitesize episode: an extension of the previously released interview with Gabrielle Gainsborough focussed on her work on Covid-19 Vaccine Clinical Trials 🦠 In this episode learn about 'challenge studies', how viruses are manufactured and how medicines are tested 💉 🎧 Listen now to hear how Gabrielle got involved and her concerns and struggles of working on clinical trials during a pandemic 🔗 https://lnkd.in/eKT2h7KD #clinicaltrials #challengestudies #stemuntapped #stempodcast #womeninstem #insight
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Our latest paper is out !!! It provides the first preclinical evidence indicating that repurposing of Montelukast, a safe and marketed anti-asthmatic drug, may be a promising sex-specific strategy for personalized ALS treatment ! #ALS#Monteukast
Postdoctoral Research Fellow at Department of Pharmacological and Biomolecular Sciences, University of Milan
I am thrilled to share that our latest paper entitled "Montelukast improves disease outcome in SOD1G93A female mice by counteracting oligodendrocyte dysfunction and aberrant glial reactivity" is finally out in #BritishJournalOfPharmacology British Pharmacological Society Check it out ==> https://lnkd.in/dFFTzDxv Many thanks to Marta Fumagalli and Tiziana Bonifacino who coordinated this project and to Fondazione AriSLA for the invaluable support. Thanks also to all the co-authors contributing to this work, it has been amazing to share this journey: Nhung Nguyen Milanese Marco Francesca Mannella Marta Boccazzi Giulia Frumento, Ph.D. Bonanno Giambattista Maria Pia Abbracchio
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CEO at The KPM Group DC LLC | Join Me in Solving for Long Standing Healthcare Inequities
2wExciting Julia Carpenter-Conlin MSW Cheers!