As we are nearing the end of the year, we are reflecting on all the things we accomplished as wAIHA Warriors in 2024! Key highlights from this year include: 🧡 Expanding Patient Education We have significantly broadened our reach by translating the wAIHA Warriors brochure into eight languages, ensuring vital information is accessible to more patients and caregivers around the world. 🧡 Building Stronger Connections We launched our first Hematologist Referral Directory to support patients in finding specialists who understand their unique needs, enhancing care pathways and outcomes. 🧡 Enhancing Patient Events Our 2nd Annual Patient Meeting experienced a 28% increase in participation, and we were thrilled to welcome over 100 virtual attendees during AIHA Awareness Day 2024, fostering deeper community bonds and shared learning experiences. 🧡 Growing Our Community We saw substantial growth across our digital platforms, with more members in our wAIHA Warriors Facebook Group, Instagram, and Twitter and an increased number of newsletter subscribers. 🧡 Strengthening Advocacy Efforts Participation in our 2024 Advocacy Day rose by 50% this year, demonstrating our community’s strong commitment to driving positive change. Thank you for your support of wAIHA patients throughout 2024! You can help keep our mission growing with a donation to our organization this season of giving. Visit our fundraising page at https://lnkd.in/gPdhM6cS to donate! #nonprofitorganization #waiha #patientadvocacy
wAIHA Warriors
Non-profit Organizations
501(c)(3) advocacy group for those diagnosed or caring for someone with warm autoimmune hemolytic anemia (wAIHA)
About us
wAIHA Warriors is an organization for those diagnosed or caring for someone with Warm Hemolytic Autoimmune Anemia, a rare blood disorder. https://linktr.ee/wAIHAWarriors
- Website
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https://www.waihawarriors.org/
External link for wAIHA Warriors
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Boston
- Type
- Nonprofit
- Founded
- 2020
- Specialties
- Hematology, Hemolytic Anemia, and wAIHA
Locations
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Primary
Get directions
Boston, US
Employees at wAIHA Warriors
Updates
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NEW wAHIA Warriors Advocacy Update is now on the blog! 📣 This year, with the support of our community of patient advocates, we have made great strides toward increasing awareness of wAIHA among our nation's legislators. From advocacy on the Hill to AIHA Awareness Day, we're proud of the momentum we've built this year and are looking forward to a successful 2025! Read our latest advocacy update here: https://lnkd.in/gYjGUYq4
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Giving a shoutout to a hematologist who is working to improve care for patients with wAIHA, Dr. Ronald S. Go, M. D. Dr. Go is a professor of medicine renowned for his expertise in benign hematology, multiple myeloma, amyloidosis, lymphoma, and Erdheim-Chester disease. He is board-certified in hematology and medical oncology, holding medical licenses in Wisconsin, Iowa, and Minnesota. Most recently, Dr. Go presented research at the Classical Hematology Conference titled "Non-Malignant Hematology and Bleeding and Thrombotic Disorders in Scottsdale, Arizona regarding wAIHA." Thank you, Dr. Go, for your dedication to advancing wAIHA research to improve treatment options for wAIHA patients! ➡️ If you're looking for a hematologist near you, use our Hematologist Directory here: https://lnkd.in/g5GGy5RZ #hematologist #waiha #raredisease
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Thank you!
"Last week, at the American Society of Hematology Annual Meeting, my colleagues and I had the chance to speak with healthcare providers about our research highlighting the impact of warm autoimmune hemolytic anemia (wAIHA) on patients and their loved ones. I’m proud of my company’s commitment to developing breakthrough innovations to support patients with autoimmune diseases like wAIHA, a rare disease that currently has no FDA-approved treatment option." - Zia Choudhry, MD, PhD, MBA, Senior Medical Director, Rare Autoantibody Immunology To learn more about wAIHA, watch this video featuring Dr. Choudhry and Ninya Bostic, National Policy & Advocacy Director, Immunology, in which they discuss wAIHA and the importance of pushing the boundaries of research to help develop transformational approaches for autoantibody-driven diseases. #ASH24 #JNJImmunology
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We're grateful for the opportunity to be featured in this article all about the patient experience with wAIHA and how we're working to make a difference!
I recently had the opportunity to speak with Karen Jones, President and Executive Director of #wAIHA Warriors, a community founded in 2020 to support, educate and advocate for warm autoimmune hemolytic anemia (wAIHA) patients, their families and caregivers. wAIHA is a rare condition where autoantibodies - misguided, or pathogenic antibodies that can attack critical organs and tissues - lead to the premature destruction of red blood cells, resulting in anemia and causing symptoms like debilitating fatigue, dizziness, shortness of breath and in severe cases, loss of consciousness. Read more about Karen’s personal experience with wAIHA and how it shaped her advocacy work.
Patient Perspective: Karen Jones on the wAIHA Patient Experience and a Path Forward
Ann Leon, PharmD, MLD on LinkedIn
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Thank you Johnson & Johnson for this excellent video explaining what wAIHA is!
Our research at this year’s American Society of Hematology Annual Meeting highlights the profound impact a warm autoimmune hemolytic anemia (wAIHA) diagnosis can have on the lives of patients and its associated burden on healthcare resources. With no FDA-approved treatments currently available, we are collaborating with advocacy organizations like wAIHA Warriors to harness the patient perspective and highlight the unmet need for targeted therapies that address the underlying cause of disease. Learn more: https://bit.ly/41omAss #JNJImmunology #ASH2024
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We're grateful to RARE Revolution Magazine for spotlighting wAIHA patients! Look out for this release tomorrow.
Join us on December 14th for our next Digital Spotlight. Sponsored by Johnson and Johnson, this time, we will be sharing the experiences of patients, caregivers, advocacy organisations and HCPs with Warm autoimmune hemolytic anemia (wAIHA). Never miss a launch. Join the RARE Revolution for free here: https://lnkd.in/eDadG9SZ #wAIHA #RareDisease #WarmAutoimmuneHemolyticAnemia #wAIHAWarriors wAIHA Warriors Johnson & Johnson
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PSA: The last day to sign up for healthcare coverage is December 15 in most states! 📅 Here are a few answers to frequently asked questions about open enrollment for patients with wAIHA. To learn more, watch our 20-minute webinar on YouTube: https://lnkd.in/gHEbvGJS
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Thanks to Dr. Irina Murakhovskaya, Momenta Pharmaceuticals, and Patient Advocacy Strategies, the wAIHA Warriors debuted at the Annual American Society of Hematology Meeting! We appreciate every opportunity we have to spread awareness and information about wAIHA with the healthcare community and are so grateful for their support!
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