Prilenia

This week the neuroscience world lost one if its finest with the passing of Prof. Nir Giladi. Prilenia is deeply saddened by the loss of one of our earliest collaborators and friend. He will be sorely missed by all of us, and by everyone he worked with throughout his illustrious career, making a difference to everything he touched. We extend our condolences to his family. 

While Huntington’s disease is life limiting, Brianna is committed to living life to its fullest. While pursuing a Master’s degree in biological research, she has also been skydiving, trained with a circus, and has flown airplanes. Read about Brianna: https://lnkd.in/e8MdsFZY

It's been a busy start to December with both The International Alliance of ALS/MND Associations - Alliance Meeting and Professional Forum and the Motor Neurone Disease (MND) Association 35th International Symposium on ALS/MND taking place! With the desperate need for new understanding and treatment options for #ALS / #MND, it is fantastic to see research professionals from across the world coming together to share the knowledge and ideas needed to make the progress the community so urgently requires. Thank you to all those working so hard to move this field forward and to those running expanded access programs that are a key part of the research and treatment process - to learn more: https://lnkd.in/gM-7S5kM

While living with Huntington’s disease can be overwhelming, for Brianna it set her life on course. Read her story: https://lnkd.in/e8MdsFZY

Exciting to see Prilenia's Andrés Cruz-Herranz, M.D., Ph.D. providing an update on the progress we are making to bring new treatment options to people with #Huntingtonsdisease in Italy, Europe and across the world, at the annual meeting of the Lega Italiana Ricerca Huntington-LIRH in Rome!

Wishing everyone attending the European Huntington's Disease Network (EHDN) UK and Ireland HD Network Meeting 2024, today and tomorrow, a hugely successful and inspiring meeting (hopefully contributed to by Prilenia's presentation outlining the progress being made to impact measures of disease progression)! To lean more about the Huntington's Disease Network visit https://lnkd.in/dU33E9TJ

"After taking a few years to process this new normal, I decided to get involved with the community by hosting fundraisers and raising awareness about HD." Prilenia's Seth Rotberg, MNM talks about his own, very relevant, journey in patient advocacy: https://lnkd.in/dHsARSDa

As an autosomal dominant condition, a child has a 50% chance of inheriting Huntington’s disease from a parent. Learn more about Brianna’s journey facing a future diagnosis of HD: https://lnkd.in/dp2qc3bt

Huntington’s disease is a rare genetic condition that causes nerve cells in the brain to decay over time. 🧠 The therapeutic field has been riddled with trial failures and abandoned studies. Only yesterday, Sage Therapeutics binned its once-promising Huntington’s program. 🗑️ 🔎 However, with the EMA’s ongoing review of Prilenia’ pridopidine and recent encouraging results for uniQure’s AMT-130, Wave Life Sciences’ WVE-003, and Roche and Ionis Pharmaceuticals, Inc.’ tominersen, effective treatments seem to be on their way. 🛣️ Read our latest article to find out what treatments are in store to treat the genetic condition! 👇 https://lnkd.in/dAi4nyaq #huntingtonsdisease #rarediseases #geneticdisorders #genetictherapies #therapeuticadvances #biotechinnovation #neurologicalresearch

Thank you to all of our sponsors for continuing to support the HD community. #letstalkabouthd