Empower Health Strategies

This was the last thing 20-year-old Meredith Mangold, CPXP expected… [Part 1] To go from a bright-eyed college sophomore studying Arabic literature at a prestigious university to a terrified, newly diagnosed Inflammatory Bowel Disease (IBD) patient about to undergo life-saving emergency surgeries. Even more unexpected? This major life disruption would someday propel her to launch Empower Health Strategies, a patient experience and engagement consultancy firm. Years after her initial IBD diagnosis, Meredith’s mission today is to emphasize the power of amplifying patients’ voices and the importance of participatory medicine. This means patients should (and deserve to) be full and active participants in their healthcare journey. But Meredith saw a gap in what digital health innovators were creating for patients, and what patients actually NEEDED to be truly empowered. So she chose to go straight to the source by working with digital health professionals to identify truly patient-centric solutions. These solutions will meaningfully address patients’ biggest pain points and make them feel seen, supported, and empowered. More to come from our inspiring conversation. Stay tuned this week. ----------------- Want to learn more about Meredith's inspiring story and innovative work? Connect with her here >> https://lnkd.in/gEXPCmW8 ----------------- #chronicillnessadvocacy #IBD #UlcerativeColitis #EmpowerHealth #EmpowerHealthStrategies

Meredith Mangold, CPXP turned her chronic conditions into her career superpower by launching her business, Empower Health Strategies. 🌟  Coming into 2024, Meredith was returning to the workforce after spending 2-3 years bed-bound while battling chronic pain and POTS symptoms. She knew what she wanted to do: start a consulting company to make an impact on the world of healthcare, but she didn't know how to do it. That's where the support and expertise of the Chronic Boss Collective community came in. This year, she: ✨ Gained the confidence and know-how to establish her LLC 🔎 Refined her branding and launched her website with the help of a fellow CBC member 📈 AND tapped into the power of the CBC to deliver fast results on her first client project  "Because of CBC I’ve found a supportive and meaningful community of women who really 'get it' — what it’s like to want to create a professional path that you really care about while still prioritizing your health." 🤝  If you're an ambitious woman living with chronic conditions, and you're ready to turn them into your career superpower just like Meredith did, take action TODAY and take our free 5-minute training. It'll totally change the way you perceive your own chronic conditions and talk about them in the world of work. ➡️ https://lnkd.in/ggXXXhtc #ChronicBoss #femaleentrepeneurs #entrepreneurship #womeninbusiness

Few digital health companies truly strive to understand the craft of medicine and the complex expertise of physicians. It's difficult work, requiring major investment in listening and building trust with curiosity. In my five years of teaming with Kyna Fong, PhD and Elation Health, I have learned so much from their approach to collaborating with clinicians. The company has very much earned their outstanding KLAS scores the hard way...and there's a fascinating story behind how that began.

I’m excited to announce that I’m officially Meredith Mangold, CPXP! 🙌🏼 This Certified Patient Experience Professional certification is a meaningful milestone in my ongoing dedication to improving patients’ experiences navigating their health journeys. 🧭 I’ve always been passionate about advocating for patients, especially those living with chronic illnesses, and I hope this designation underscores my commitment to amplifying their voices in the rooms where things happen! 😉 Thank you for joining me on this journey! 🙏 Patient Experience Institute #CPXP #CertifiedPatientExperienceProfessional #PatientExperience #PatientEngagement

This is so cool! Working with tech makes humans more efficient. When humans are enabled with technology, we can do our jobs more efficiently and focus on care where it is needed! #AI #tech #Healthcare Check out the article here: https://lnkd.in/ew9rkFnD

When you want to design a patient-centered solution — talk to patients. 💊 It’s a simple but often undervalued step. When chronic patients put our heads together, we come up with healthcare design solutions that matter. Working with Leah Schulz and Trudy Wonder on the U.S. Department of Health and Human Services (HHS) and Coforma | Health+™ Long COVID Healthathon was my ideal collaboration. We enlisted a crew of other chronic patients to help us define our target problem and worked as a team of three to prototype a solution. I delivered the Long Hauler Smart ID card’s brand identity, video, infographic, and static prototype. You can read more about our finalist submission on the Coforma blog: https://lnkd.in/eWtF7HbA Special thanks to Meredith Mangold of Empower Health Strategies for her guidance and video debut in our explainer. That’s the power of patients💪

PERFORMING WITH PATIENTS Patients as experts not entertainment I recently posed a question to an industry panel about how they intended to evolve their relationships with patient organisations from ‘dating for data’ to a long-term partnership with scientific equality and enquiry on both sides of the partnership. For context, this was at a patient conference. For clarity, this was an event comprising patient experts, able to interpret complex clinical trial data, ask insightful questions about research practices and provide input about nuances of pathology pertaining to their condition. Lived and live expertise. The answers from the panel were as expected: some condescension, some comments about projects that were beyond trial participation. But it was still mostly superficial and a lack of what true partnerships with patient organisations have to offer. There was underlying trial recruitment and ‘pick me’ chat. And as usual there was the throw away comment of ‘I learn much when patients come into my office and talk about their condition’. Which is just the kind of thing that make me angry. I’ve spent a considerable portion of my time as a Patient Engagement Professional trying to encourage colleagues in Biopharma to stop seeing patients as entertainment — puppets on a string brought in to say the right thing, the emotional thing to an internal meeting to rev-up a company comms meeting or a sales meeting or a chance to chant about patient focus. The one time I tried to create a round table with CEOs of Patient Organisations and CEO of a pharma company there was such an outcry and attempt to prevent the session taking place that it became a 15min 1-1 allotment with guards accompanying people to and from the offices that it was the antithesis of partnership. It’s time for such silliness to stop. Patients are experts not entertainment. Within the #ISPEP community we will create the new normal for patient science partnerships with pharma — puppets not included, professionals welcomed. Www.ispephub.org #PatientEngagement #PatientOrganisations #PatientAdvocacy #rarediseases #PatientEmpowerment #PatientVoice #PatientEngagementProfessionals #PatientAffairs #PatientFocus #PatientCentricity