Register today for the January 22nd, 2025 GCAC webinar, announcing the launch of the Genetic Cardiomyopathy Registry! Click to register: https://lnkd.in/guMz32Mi
DCM Foundation
Non-profit Organization Management
Columbus, OH 565 followers
Providing hope and support to dilated cardiomyopathy patients and families through research, advocacy and education.
About us
The DCM Foundation is a non-profit organization with a mission to provide hope and support to patients and families with dilated cardiomyopathy through research, advocacy and education. We focus on connecting with DCM patients and families and developing resources for the education and support of the DCM community. If you need support, please email info@dcmfoundation.org or visit our website to learn more!
- Website
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https://www.dcmfoundation.org
External link for DCM Foundation
- Industry
- Non-profit Organization Management
- Company size
- 2-10 employees
- Headquarters
- Columbus, OH
- Type
- Nonprofit
- Founded
- 2017
- Specialties
- Dilated Cardiomyopathy, Heart Health, and Patient Advocacy
Locations
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Primary
Get directions
Columbus, OH, US
Employees at DCM Foundation
Updates
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Know the signs and symptoms so you can #ThinkCardiomyopathy when it matters most! Visit our partner @globalhearthub_org's website (globalhearthub.org) for cardiomyopathy information and our website for DCM information (dcmfoundation.org) #CardiomyopathyAwareness #Cardiomyopathy2024 #ThinkCM
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The Kean University’s Genetic Counseling Graduate Program is studying parent perspectives on genetic testing and screenings for cardiomyopathy in children. Your input could help shape future guidelines and support for families. About the Study: Purpose: Understand thoughts on genetic testing for children at risk Details: 20-minute survey (17 questions, plus optional follow-ups) Where: Complete on any device Why participate? Your insights can help guide clinical practices and improve support for families. To complete this survey, please click here: https://lnkd.in/garDgERP
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Do you have the TITIN gene variant? There's an online community for you! Join now to connect with fellow TITIN patients: https://lnkd.in/gYYbkRjM
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After heart medication, a ventricular assist device, and 246 days on the transplant list, young Raleigh finally received a new heart. Read his story and hear about his family's hope: https://lnkd.in/gAJarSB3
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‼️TOMORROW‼️ Please join us and Genetic Cardiomyopathy Awareness to learn about Tenaya’s gene therapy trials. Dr. Whit Tingley, Tenaya Therapeutics' Chief Medical Officer, will share updates on Tenaya’s MyPEAK-1 Study for HCM due to a MYBPC3 mutation and their RIDGE-1 Trial for ARVC due to a PKP2 mutation. Dr. Tingley will talk about how TN-201 and TN-401 are intended to work and discuss recently announced updates on the design and status of each clinical trial. This will be an exciting webinar highlighting the advances of gene therapy for cardiomyopathies and the hope for the future. Register for free: https://lnkd.in/eMQ5SayZ
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Spending time with family this holiday season? Enjoy those precious moments together! Also, set aside a few minutes to discuss your family's health history. DCM can be genetic and passed down within families. A short conversation can keep everyone more informed about their health. Learn more about DCM genetics:https://lnkd.in/g7ZgrhY7
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What a year! Together, we’ve achieved impactful milestones, bringing hope and tangible benefits to patients and families affected by DCM. We're reaching more of the DCM community than ever, sharing information in new ways, and creating spaces and initiatives that benefit patients. Read about all of our accomplishments this year: https://lnkd.in/gqhbkVXH
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To read Lexeo's latest clinical trial update, please click this link: https://lnkd.in/gbEdM3Xt
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Sign up to stay informed about LMNA therapies: https://lnkd.in/gE8dzGVV
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