Children's Brain Tumor Foundation

🏛️ Good news from the Alliance for Childhood Cancer! All of the Alliance’s year-end priorities have been included in the continuing resolution, and we’re expecting the vote to happen this Friday! This includes key priorities like: • AKACA • Innovation in Pediatric Drugs Act • Creating Hope Reauthorization Act • RARE Act • Gabriella Miller Kids First Research Act This is a big step forward for the pediatric cancer community, and it wouldn’t have been possible without the hard work and collaboration of everyone at the Alliance. A heartfelt thank you to all who have made this progress possible! We’ll keep you posted as things unfold! 🙏 #AllianceForChildhoodCancer #PediatricCancer #LegislativeProgress #HopeForKids

🎉 CBTF is now on Blue Sky! We’d love for you to join us as we share updates, stories, and resources to support more families facing pediatric brain tumors. Let’s stay connected and continue building a supportive community together 💛 #StrongerTogether #CBTF #BlueSky #Community https://lnkd.in/eU4Ai6c8

❄️ 4 Tips for Navigating Holiday Celebrations During Treatment or Recovery: The holidays can be a joyful yet challenging time for families navigating pediatric brain tumor treatment or recovery. Here are some tips to help make celebrations meaningful and manageable: 🎄 Adjust Traditions: Focus on simple, low-energy activities like watching favorite holiday movies, decorating together at home, or baking easy treats. 🗣️ Communicate with Family: Share your child’s needs and energy levels in advance. Suggest alternatives to large gatherings, like shorter visits or virtual hangouts. 💡 Create a Safe Space: Let family know how they can support your child—whether it’s giving space to rest, avoiding certain topics, or simply being present. ❤️ Focus on Connection: Remember, it’s not about how much you do but the moments you share. Little gestures like reading a holiday story together can create cherished memories. As you celebrate this season, know that your CBTF family is here to support you every step of the way. For resources or to connect with others, visit CBTF.org. ✨ What are your favorite ways to create meaningful holiday memories? Share below! #Holidayseason #inclusivity #cancersurvivor #cancertreatment

🔬Researchers at Washington University in St. Louis have found that brain tumors can disrupt the body’s natural circadian clock to fuel their growth. This discovery sheds light on a key process that may lead to more targeted and effective treatments. “Glioblastoma takes its cues from hormones released by the same central clock in the host that establishes the body’s regular daily rhythms,” Erik D. Herzog, PhD, senior author of the study. #BrainTumorResearch #CircadianRhythms #CancerBiology #MedicalResearch #StLouis https://lnkd.in/etkdy_Bu

🏔️ Ready to Hit the Slopes with CBTF? 🏔️ Join us for an unforgettable overnight ski and snowboard adventure in the White Mountains! This exciting trip takes place at Loon Mountain in partnership with New England Disabled Sports. ❄️ We’ll depart Saturday morning, February 1, 2025, and return Sunday evening, February 2, 2025. Buses will leave from central locations in New Jersey and the MetroWest Boston area, and participants will need to arrange their own rides to these departure sites. ⛷️🏂 Your trip includes a ski or snowboard lesson, Saturday dinner, Sunday breakfast, and a light lunch on Sunday. Snacks and any additional meals will be at your own cost. Space is limited, so don’t wait—register now! For questions or more information, contact Stephanie at sfreeman@cbtf.org. 🎿Sign up: tinyurl.com/cbtfski24 #cbtf #cbtfskitrip #skiing #snowboard #inclusion #accessibility

We want to hear from you! 🌟 As we reflect on 2024, your feedback will help shape our programming and services for 2025. Take a moment to share your thoughts on our Fall offerings and let us know how we can continue to support you in the year ahead. Take the survey here: https://lnkd.in/dnwRzyjz #CommunityFeedback #YearInReview #CBTF

💔 Our hearts go out to Joules Smith’s family during this incredibly difficult time. Her father beautifully shared, ‘We take so much comfort in knowing she inspired and touched the lives of so many people from around the world.’ Joules’ courage and the outpouring of love through the ‘Dancing for Joules’ campaign remind us all of the power of community and hope. Together, let’s continue to raise awareness for DIPG and support families navigating pediatric brain tumors. #ChildhoodCancerAwareness #DancingForJoules #PediatricBrainTumorJourney Read more about Joules’ inspiring story: https://lnkd.in/eb79PWpt

Your Journey, Your Strength, Your Story 💪 To every survivor and family navigating the journey of a childhood brain tumor—your story is about so much more than a medical chart. 💙 You are strength. You are resilience. You are dreams, laughter, creativity, and hope. Yes, there are challenges—hospital visits, medications, and treatments—but those are only a part of your journey. On the other side is everything that truly defines you: love, friendship, achievements, and the unbreakable spirit that keeps pushing forward. Every day, you prove that a diagnosis does not define a life. Together, as a community, we celebrate you and stand by your side through every step of the way. ✨ You are limitless. You are unstoppable. You are more. ✨ Learn more about how we support survivors and families at www.cbtf.org. #SurvivorStrength #MoreThanADiagnosis #ChildhoodBrainTumors #Resilience #Empowerment

🍳 We had a fantastic time at CBTF Cooks! Families came together to create their own mini-quiches, choosing from a variety of mix-ins like broccoli, ham, salami, spinach, peas, and different types of cheeses. It was a great opportunity for creativity and fun in the kitchen! A special thank you to Jenna’s Rainbow Foundation for making this wonderful program possible. Thank you to Tyler West for capturing these amazing moments! #CBTFCooks #FamilyFun #ThankYouJennasRainbow #CreativeCooking #CBTF #CommunitySupport

🌟 New Parent Support Group for Spanish-Speaking Families: We’re excited to introduce Karla Garcia, our new social worker, who will be leading monthly support groups for Spanish-speaking parents! Join us for the first session on December 14th at 6:30 PM ET/3:30 PM PT. This group offers a safe space for Spanish-speaking families to connect and share experiences. Don’t miss out on this opportunity to find support and strength in our community. ✨ Register here: tinyurl.com/pssg24 #CBTF #PediatricBrainTumorSupport #FamilySupport #SpanishSpeakingFamilies #CBTFCommunity #HopeAndHealing #ParentSupport