My name is Brianne—I’m a PNH patient, and 2024 marks my ninth year as a donor. 2024 is coming to a close, and the Aplastic Anemia and MDS International Foundation (AAMDSIF) needs your help to end the year strong 💪. ❤️The Foundation's work is only possible with support from people like you and me ❤️. Join me and help them end the year strong by donating today at aamds.org/donate. #aplasticanemia #MDS #PNH #BoneMarrowFailureDisease #RareDiseases
Aplastic Anemia & MDS International Foundation
Individual and Family Services
Rockville, Maryland 757 followers
We provide answers, support and hope to patients with rare blood cancers and bone marrow failure diseases.
About us
The Aplastic Anemia and MDS International Foundation (www.aamds.org) is an American nonprofit health and patient advocacy organization that supports, connects and educates patients, caregivers and health professionals on rare bone marrow failure diseases worldwide. It promotes and invests in collaborative clinical research to accelerate the discovery of better treatments and the search for a cure for aplastic anemia, AML (acute myeloid leukemia), MDS (myelodysplastic syndromes), PNH (paroxysmal nocturnal hemoglobinuria) and related bone marrow failure diseases. AAMDSIF is a 501(c)3 organization.
- Website
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http://www.aamds.org/
External link for Aplastic Anemia & MDS International Foundation
- Industry
- Individual and Family Services
- Company size
- 11-50 employees
- Headquarters
- Rockville, Maryland
- Type
- Nonprofit
- Founded
- 1983
- Specialties
- Patient Education, Caregiver Education, Research, Health Professional Education, Rare Diseases, Aplastic Anemia, Myelodysplastic Syndrome, Paroxysmal Nocturnal Hemoglobinuria, Acute Myeloid Leukemia, and Bone Marrow Failure Diseases
Locations
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Primary
401 N. Washington Street
Suite 430
Rockville, Maryland 20850, US
Employees at Aplastic Anemia & MDS International Foundation
Updates
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She needed so much blood! The marrow biopsy showed Aplastic Anemia. Though her treatment was rough, Kami came through, though she escaped the hospital briefly to get married! Read Kami's story here: https://lnkd.in/gSEcDvmk
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Living well with Aplastic Anemia, MDS, or PNH can be a challenge, but having the right nutrition can help. Learn how choosing the right foods at the right time can make a difference in this recording: https://lnkd.in/eqA52Z9R #aplasticanemia #mds #PNH #marrowfailure
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Thank you for supporting the Aplastic Anemia & MDS International Foundation in 2024! If you volunteered, donated, or attended a fundraising event, you’ve made a significant impact, and we are deeply grateful for your partnership❤️. We hope we can count on your continued support in 2025. Together, we are making a difference in the lives of bone marrow failure patients and their families. #aplasticanemia #MDS #PNH #BoneMarrowFailureDisease #RareDiseases
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"It's okay. Today's maybe not my day, but tomorrow may be a better one." Listen to Brian tell his story of dealing with MDS: from diagnosis through "watch and wait" through transplant, he shares his experience in this podcast episode: https://lnkd.in/eav2t7s6 #MDS #bloodcancer
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Save the Date! 2025 AAMDSIF Bone Marrow Failure Summit: Translating Science to Advance Patient Outcomes Coming March 6-7 Rockville, MD Poster and location info: https://lnkd.in/egZgpQjM
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We are wishing everyone the Happiest of New Years today! May 2025 bring good things your way! The offices remain closed until January 6. Until then, be sure to visit the website, aamds.org, to discover webinars, patient stories, and disease information designed for patients and families!
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🚨🚨🚨 Our match expires at midnight! 🚨🚨🚨 All donations made before midnight will be ✨✨✨DOUBLED✨✨✨ up to $7,500. Take advantage of this opportunity to double your impact! Make your donation now at aamds.org/donate We are deeply grateful for your past support and look forward to your continued partnership in the new year. #aplasticanemia #MDS #PNH #BoneMarrowFailureDisease #RareDiseases
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Tomorrow is the LAST day to make your 2024 tax-deductible gift to AAMDSIF, and the LAST day to help us meet our match challenge! All donations made before midnight tomorrow will be ✨✨✨DOUBLED✨✨✨ up to $7,500. Your donations enable the Foundation to help patients living with diseases like aplastic anemia, MDS, and PNH at every critical point in their journey. Will you help us meet our match and finish the year strong so we can hit the ground running in 2025? Make your donation now at aamds.org/donate #aplasticanemia #MDS #PNH #BoneMarrowFailureDisease #RareDiseases
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Recording available now! Panel Discussion: The Spectrum of Supportive Care for Bone Marrow Failure Patients from the 3rd Annual DEI Bone Marrow Failure Symposium https://lnkd.in/gRFYqAdG