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Jackie Dreher Neurosurgery-Moyamoya

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Jackie Dreher needs your immediate help in her fight against Lupus and Moyamoya Syndrome!  

Jackie, age 24, has been diagnosed with a rare cerebrovascular condition called Acquired Moyamoya Syndrome as a result of  Lupus (SLE), which is an autoimmune disorder.  This rare syndrome causes progressive narrowing of the internal carotid arteries in the brain, for which there is no cure.  Jackie's only fighting chance is to have neurosurgery to redirect an artery to resupply areas of her brain that aren't getting enough blood. Jackie will be undergoing neurosurgery on November 9th, 2016.  

All funds that are raised will go directly to Jackie to help towards her medical, living and transportation costs.  


Jackie's Story:  
Jacqueline (Jackie) Dreher, is the daughter of Steve and Stef Dreher, granddaughter of Paul and Marguerite Holzworth and Mike and Marilyn Dreher, and sister to Kayla and Austin Dreher. She and her long-time boyfriend, Andy Maskiell live in Boston. Her loved ones would attest that she is the embodiment of indepedence, determination, creativity, and generosity.  Jackie, a graduate of Interlochen Arts Academy and the Eastman School of Music, is an aspiring classical trombone player. Aside from that, she is long-time vegetarian and former Greenpeace intern, effortlessly and actively artistic, and a devoted friend who will go far beyond the extra mile to help someone in need.  She is also in love with her two rescued cats. 

Jackie's medical struggles began during her senior year at Eastman, when she was diagnosed with the autoimmune disorder, Lupus (SLE).  Following graduation, she moved to Massachusetts to attend Boston University (BU) to obtain her Master’s Degree in Trombone Performance.  

Since her diagnosis three years ago she has battled fatigue, joint pain, hair loss, and extreme sun sensitivity.  Despite the constant physical and mental obstacles Jackie has faced with lupus, she completed all of her coursework for her Master's degree and was ready for her final degree requirement - her graduate recital- set at the end of the school year when her family could be there to support her. Two weeks prior to her recital and graduation, the culmination of her hard work was put on hold for her health.  In early May of 2016, routine blood work showed decreased kidney function and she was admitted to the hospital for a kidney biopsy.  Jackie was diagnosed with grade 4 lupus nephritis, a condition where the lupus causes severe inflammation of the kidneys.    


On Mother's Day, May 8th, 2016, Jackie suffered multiple strokes while hospitalized.  She has no memory of the first week following her stroke.  In June, she went to her parents' home in Iowa to recover.  After completing two months of intensive six-hour-per-day stroke rehab sessions, Jackie was determined to return to Boston to  regain some normalcy in her life.  She resumed working part-time and again began practicing for her degree recital, which was rescheduled for the first week of this upcoming December.  

Unfortunately a few weeks ago, follow-up scans of her brain showed that she has Acquired Moyamoya Syndrome and that her disease has progressed within a four-month time frame.  Both her neurologist and neurosurgeon emphasized the urgency in her situation.  Jackie will be undergoing surgery at Boston Children's Hospital, where there are specialists who have treated Moyamoya patients from all over the world.


Jackie is fiercely independent, and it has been a struggle for her to ask for assistance of any kind.  Prior to her stroke, Jackie was financially independent, working full-time while attending graduate school.  To do so now, would risk her health, as putting stress on these vessels could cause her to have a stroke at any time.  We don't know what the road ahead will look like for her, but we do know that she needs to stay in the Boston area, where she will be having her surgery completed by world-class neurosurgeons who specialize in treating this rare disease.   Your assistance will allow her to stay in Boston where she can receive the specialized care she needs.  

Jackie has health insurance, but she will be responsible for a portion of her hefty medical costs from the surgery, as well as the numerous prescriptions she takes each month, and periodic chemotherapy treatments to keep her lupus at bay. She and her boyfriend, Andy, live in a modest apartment in the Boston area and she relies on public transportation to get to/from the medical center for her numerous appointments.  We are thankful for her access to excellent medical care, but the cost of living in Boston is challenging, especially since she will be unable to work for an extended period of time while she undergoes her surgery and recovery period.  Facing this diagnosis has been an emotional and financial struggle for her and her family and although it is difficult to ask for it, she needs your immediate help.  Any amount of assistance would be greatly appreciated!  



Thank you for reading her story and thank you for your help! 

http://www.ninds.nih.gov/disorders/moyamoya/moyamoya.htm

http://www.childrenshospital.org/conditions-and-treatments/conditions/moyamoya-disease/symptoms-and-causes

Link to an article by Jackie's neurosurgeon on Moyamoya:  
http://moya-moya.com/wp-content/uploads/2011/05/moya-moya.pdf

For information on Lupus please visit:  
http://www.mollysfund.org :  Molly's Fund Fighting Lupus
http://www.lupus.org : Lupus Foundation of America


This page was created by Jackie's sister, Kayla.

Donations 

  • Chapter 20130 Royal Neighbors of Bettendorf
    • $1,550 (Offline)
    • 8 yrs

Organizer and beneficiary

Stef Dreher
Organizer
Bettendorf, IA
Jacqueline Dreher
Beneficiary

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